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PMR: Pain moving around your body

Polymyalgia Rheumatica (PMR) | Last Active: Sep 24, 2022 | Replies (40)

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@tillysam

Talk about being on a roller coaster, I was down to 6 mg when the body pains were quite severe. I was moved up to 10 mg and felt better. Last week I developed a stabbing headache ( nothing like the debilitating headache of GCA) and ended up in the ER. All tests were good and the physician had no idea what was wrong. My rheumatologist put me up to 20 mg and the headache went away, yet I feel awful all told. I plan to see my neurologist just to rule out anything else. I truly do not know what is going on. Any suggestions? Thanks

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Replies to "Talk about being on a roller coaster, I was down to 6 mg when the body..."

@tillysam, I'm wondering if you may have been tapering down on the prednisone too fast or dropping the dosage too much at each taper. I would have a discussion with your rheumatologist on tapering plans. Mine always told me the goal was very little pain when tapering down to the next level.

I feel your pain! Literally!
I have PMR too…
Do you drink coffee? Or other caffeinated drinks? Maybe try cutting way back. Drink more water and give meditation a try…