Diagnosed with cholangiocarcinoma, can this be treated?

Posted by suchita90 @suchita90, Nov 10, 2021

Father in law is diagnosed with this and surgery could happen. But seems like chemo is not ending, even oral chemo is happening. Lot of side effects after 8 chemos
Any treatment to cure permanently and what long term measures can be taken.
Do suggest. Thanks

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wjdemarco | @wjdemarco | Jun 13, 2022

In reply to @billdemarco "looking for anyone with diagnosis of extraheper Outside the organs) bile duct cancer with no tumors..." + (show)

I have this, extraheper no apparent tumors , metastases to lymphnode
16 chemo and at mayo for second opinion.

lvtexas | @lvtexas | Sep 11, 2022

In reply to @billdemarco "looking for anyone with diagnosis of extraheper Outside the organs) bile duct cancer with no tumors..." + (show)

@billdemarco - Hello. Where / what lymph nodes did the Cholangiocarcinoma spread to? What treatment options did you get or have taken?

Thanks, LVTexas

lvtexas | @lvtexas | Sep 11, 2022

@wjdemarco - Hello. I have been diagnosed with same, i do have duct tumor. Not sure if there are more. What treatment plan are you on and what did you find helpful?

wjdemarco | @wjdemarco | Sep 11, 2022

In reply to @lvtexas "@wjdemarco - Hello. I have been diagnosed with same, i do have duct tumor. Not sure..." + (show)

Sorry to hear you must wrestle this beast. First choice was gem/cis chemo. Completed 8 cycles 16 rounds of chemo with little side effects. Selected mayo as second opinion back in may. Shrunk most tumors but somr growth. No new cancer is the good news Now on Folfox 6 . A bit heavier with nerapthy the worst side effect. Mayo will reevaluate in december
Good luck, happy to talk
Bill

lvtexas | @lvtexas | Sep 11, 2022

In reply to @wjdemarco "Sorry to hear you must wrestle this beast. First choice was gem/cis chemo. Completed 8 cycles..." + (show)

@wjdemarco - Bill - I haven’t had any infusions yet. My local oncologist offered up gem/cis with immune therapy. Have you tried the immune therapy yet? It was FDA approved based on a study TOPAZ-1. I have Cholangiocarcinoma (thought could operate) but found enlarged lymph nodes in chest. Headed to Mayo for biopsy to see what is in the chest. Suspect Bilary cancer moved to lymph nodes so surgery isn’t option. I pray that my local team was wrong. What’s a course, cycle or count of chemo mean? And how long have you been fighting this? I was recently diagnosed. Thank you!

lvtexas | @lvtexas | Sep 11, 2022

In reply to @lvtexas "@wjdemarco - Bill - I haven’t had any infusions yet. My local oncologist offered up gem/cis..." + (show)

@wjdemarco Bill: I’m looking for hope, health and healing. This front part has been a roller coaster. Thanks for listening.

Colleen Young, Connect Director | @colleenyoung | Sep 24, 2022

In reply to @lvtexas "@wjdemarco - Bill - I haven’t had any infusions yet. My local oncologist offered up gem/cis..." + (show)

@lvtexas, how are you doing? Have you been to Mayo yet? Any update?

lvtexas | @lvtexas | Sep 25, 2022

In reply to @colleenyoung "@lvtexas, how are you doing? Have you been to Mayo yet? Any update?" + (show)

Hello @collenyoung,

Yes, returned from visit at Mayo.

I’m waiting to hear on chemo recommendation and then will execute.

lvtexas | @lvtexas | Sep 25, 2022

In reply to @lvtexas "Hello @collenyoung, Yes, returned from visit at Mayo. I’m waiting to hear on chemo recommendation and..." + (show)

@colleenyoung Sorry, I got your name wrong.

lvtexas | @lvtexas | Sep 25, 2022

In reply to @lvtexas "@colleenyoung Sorry, I got your name wrong." + (show)

Hi All,

I have been diagnosed with both pancreatic cancer and Cholangiocarcinoma. Chemo treatment is being discussed at Mayo. Has anyone here had cancer in both locations?

And, if yes, what was your experience moving forward?

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