MUSC Patient and Family Virtual Conference on September 9th

Posted by becleartoday @becleartoday, Sep 2, 2022

Before you get totally into holiday weekend mode, let me alert you to a patient conference. The conference called “2022 Update on NTM Infections Patient and Family Session” will be sponsored by the Medical University of South Carolina (MUSC) on Friday, September 9th. It will be both an in-person and virtual conference and they have extended the sign-up period to next Wednesday the 7th. Best of all, it will be led by the highly regarded Dr Patrick Flume and it is FREE!!!

Dr Flume is an expert in Cystic Fibrosis, Bronchiectasis and NTM Lung Disease. He is frequently cited for suggesting that bronchiectasis is not just a cycle of airway dysfunction, inflammation, infection and structural damage, but rather a vortex. His model acknowledges the interconnectedness of all the characteristics of BE and the complexity of the disease.

The MUSC NTM team will discuss different aspects of care ranging from diagnostic testing, treatment and monitoring, and review opportunities for advocacy and clinical research. The MUSC NTM team consists of pulmonary and infectious disease clinicians, nursing, respiratory therapy, pharmacy and psychology who work together to address the needs of those affected by NTM infections. (paraphased from the MUSC website)

To sign up, go to https://bit.ly/3Q5oBk9 and select the “online registration portal” on the left. You will have to register as a medical professional so select “Other” and “Patient Advocacy” as your specialty. (I confirmed this with the office overseeing registration)

This event is not expected to be recorded.

Thank you To bronchi-sister L from South Carolina for letting us know about this fantastic learning opportunity!

Enjoy the Labor Day weekend and reward yourself for all the hard work you put into managing your disease.

Best,

Linda Esposito, MPH

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

cappidog16 | @cappidog16 | Sep 9, 2022

In reply to @sueinmn "@cappidog16 & @kwi - Here is the link, which you can try. It will ask for..." + (show)

Thanks so much! It looks like I am registered because I tapped on the link and it says it’s off the air. Looks like I will be able to get the conference at 2 pm.
I appreciate your help so much.

helenrivera | @helenrivera | Sep 9, 2022

In reply to @sueinmn "@cappidog16 & @kwi - Here is the link, which you can try. It will ask for..." + (show)

I clicked the link earlier was able to get and its said off the air. I am now in and its 12:18 pm in my part of your world.....not sure how late I am🙁🤗

Sue, Volunteer Mentor | @sueinmn | Sep 9, 2022

For any of you who were not able to listen today, Dr Flume said at the beginning that it will be available to watch later.

Gapper | @gpironi | Sep 9, 2022

Thanks for posting. I was able to make it. Very good presentation by the MUSC NTM team.

becleartoday | @becleartoday | Sep 10, 2022

In reply to @cappidog16 "I signed up for the MUSC Conference last week on my computer. I followed all of..." + (show)

It was held yesterday. It might be available in a recording. Do you have MAC? These podcasts are excellent http://www.NTMTalk.com

becleartoday | @becleartoday | Sep 10, 2022

In reply to @sueinmn "For any of you who were not able to listen today, Dr Flume said at the..." + (show)

Thanks, Sue. I missed the beginning. Good to know.

cappidog16 | @cappidog16 | Sep 10, 2022

In reply to @becleartoday "It was held yesterday. It might be available in a recording. Do you have MAC? These..." + (show)

Thanks so much. I was able to get the conference online. So nice to have other resources to get more information from.

becleartoday | @becleartoday | Sep 10, 2022

In reply to @cappidog16 "Thanks so much. I was able to get the conference online. So nice to have other..." + (show)

Excellent!
Best,
Linda Esposito

totty | @totty | Sep 10, 2022

I did not register because Bronchiectasis was not subject material but I did write to the MUSC address to request notification of any pertaining to above subject matter. I will share anything I receive as I am sure the test of you will as well.

cmi | @cmi | Sep 11, 2022

In reply to @sueinmn "For any of you who were not able to listen today, Dr Flume said at the..." + (show)

It was great information shared by all presenters. I am excited to hear about the “phage therapy for future “…let’s stay informed ….and bring any news back to the forum.

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