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I'm posting this on behalf of my wife. She's diagnosed with RA, and Pulmonary Fibrosis , interstitial lung disease brought on by the RA.
Her Pulmonary condition is steadily worsening for the last several months. Severe fatigue, shortness of breath, lack of energy, prolonged, and chronic coughing. Basically, she has become increasingly inactivate. My primary area of concern is the lung issue, RA being secondary.
She does have a local rheumatologist, pulmonologist, whom she sees periodically. At this point in, time I don't feel she's having her needs met , with any therapies, other than some prescriptions.
Wishing for her to be seen, and evaluated, comprehensively, by a "new and fresh set of eyes, and minds".....I inquired, and requested an appointment, with the Mayo Clinic, Scottsdale, AZ pulmonary team.
Sadly, I was told that no appointments are available, at this time, and there is no waitlist. Only suggestion offered was to keep checking back periodically for appointment openings. I have also made an inquiry at City of Hope Medical Center in California, and waiting for response.
Can anyone offer any suggestions for lung specialists/medical centers/hospitals, (west coast) that offer a "team approach".....but not necessarily a requirement.....just looking for an excellent lung specialist.
We live in California.
Thank you for any impute.
Replies to "I'm posting this on behalf of my wife. She's diagnosed with RA, and Pulmonary Fibrosis ,..."
@rntichauer, might Mayo Clinic in Rochester, MN be an option for you and your wife?
Have you looked into stem cell therapy? There s a clinic advertising treatments involving lungs and RA. They are private pay which I could not afford, but their treatment protocols are fantastic. I watched a video webinar that emphasized their meticulous care for patient safety. They have a clinic location in Tiajuana. I think the name was Stem cells.com. with the clinic run be an Amercan doctor with a bunch of advanced degrees including MD-PhD. This organization has clinics in many foreign countris, but not US, which has banned fetal chord stem cell therapy. Good luck, hope you find a way to help your wife. I have RA-like symptoms, which I control with water fasts and a diet that periodically avoids almost all foods except coconut flakes walnuts, distilled water, alcohol free beer (for probiotics). You might look into the Facebook AIP low inflammation diet. Also, nebulizing colloidal silver helped clear my lungs of a severe viral infection. I am taking low dose Naltrexone(LDN), which is helping to subdue inflammation and pain sympts. Ageless pharmac online. I had to extend the break in period for the drug from several weeks to a couple of months. However, I m on a full dose now and it is definitely helping. Hope you are able to help your wife. All the best.
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I had some serious undiagnosed lung and breathing issues a couple years ago that (fortunately) turned out to be adult onset asthma (I am much better now). Bit when I was suffering I was about to contact National Jewish Health in Denver. I understand they are the best. Might be worth contacting.