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DiscussionI am looking for others diagnosed with microscopic colitis
Digestive Health | Last Active: Oct 27, 2023 | Replies (198)Comment receiving replies
Replies to "I’ve been on budesonide for six years with no remission. I’ve never tried their Pepto-Bismol tablets..."
Hello
I was just diagnosed with LC a month ago. I have had some success with imodium. I don’t want to knock my immune system down with budesonide. I have it and might need it once the 6 weeks of imodium is up. Pepto makes me anxious and the muscle jerks are weird.
I would love some advice about living a better life as far as traveling or doing anything really.
The thought of being too far from a restroom consumes me. My anxiety attacks seem worse. I am weak nauseous and fatigued. I do have some better days.
I wonder if remission is just a term that dangles out there, or if it worth hoping for.
I have been a patient at the Mayo in Scottsdale for 13 years. After my celiac and colitis diagnosis my care has been anything but stellar.
I am looking into options in SLC, no one here in the LV area even treat colitis.
My follow up appointment in AZ will be 4 months after diagnosis. I am just winging it trying to get any advice.
Hope you feel better soon!!