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Renal complex cyst requires MRI with contrast
Transplants | Last Active: Sep 10, 2022 | Replies (26)Comment receiving replies
Wow, @hello1234, you are sure going though a lot right now! Thinking of you, and hoping everything works itself out soon so you can relax. Did all of this show up at your two year biopsy appointment? I would definitely ask your tx team about the contrast. In July I had a CT with contrast for the first time in a long time and the ER doc did consult with Mayo. They just had to hydrate before and after. I didn’t have any known side effects, except the expected weird feeling when they inject it. On the complex cyst, if I were in your place I would want to find out if possible. I do know anyone can get simple cysts, but being that it complex I would expect them to be following it carefully. When will they re-test for BK? Please keep us posted about what happens. Do you need to go back to Mayo regarding the cyst?
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Hi @jennifer0726 😊
Thank you so much for joining in! As usual, you know exactly how I feel.
You are correct, I feel like there is a lot going on right now that I am concerned about. I am feeling a little overwhelmed.
My immune suppression was reduced and I retest for my BK virus load this coming Monday. My last test came back with an increase of double the viral load, so I am praying that next week it stops going in the wrong direction.
My BK was found during my routine lab work before I arrived at my two year anniversary visit. Are you testing for BK virus on a regular basis? I forget if you are on Cellcept and Tacronlimis too?
I also had an ultrasound that showed mild calieltasis of the transplanted kidney. I assume that is caused by the BK virus. (Unfortunately, I didn't catch that note on the ultrasound report until I got home so I didn't have a chance to discuss it.)
The complex cyst is on my native kidney and I agree with you that I need to get it diagnosed. Being on immune suppression increases the chance of cancer so that is always in the back of my mind too.
With a new opportunistic infection like BK, it tells me that my body thinks I am over immune suppressed so a possible malignancy concerns me.
It's so difficult for me to find the perfect cocktail of meds that protects against rejection, but doesn't encourage these infections.
My immune suppression was lowered during my CMV virus, but I guess it was not low enough to prevent my BK virus. Cellcept and Tacronlimis are very effective medications to protect against rejection, but I think for me they may be too powerful, at least at these dosages.
I am curious what meds at what dosage is going to ultimately allow me to live the healthiest life possible.
Thank you again Jennifer for being there for me and for always jumping in to help.