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How do you cope with Mixed Connective Tissue Disease?
Autoimmune Diseases | Last Active: Aug 8, 2023 | Replies (65)Comment receiving replies
Hi krcc, I moved your latest message to the discussion where you were connecting with fellow members like @marye2 @sueg42 @renm @guthealth @1corinthians926 @irish283
See here:
- How do you cope with Mixed Connective Tissue Disease?: https://connect.mayoclinic.org/discussion/mctd-265a2b/
@krcc, I'm sorry to hear that MCTD is affecting so many organs and causing other conditions to deal with, such as renal failure, heart issues, digestive issues and now a solid mass on your liver. Are you scheduled for further testing to find out more about the mass?
Replies to "Hi krcc, I moved your latest message to the discussion where you were connecting with fellow..."
@krcc Thank you for sharing your experience. I have been having similar symptoms and health problems. I was finally diagnosed after my bloodwork results were positive for RNP autoantibodies. The first ANA test was a false negative. My hematologist reran some labs including ANA and it was positive. So, she did further testing and I have high levels of RNP. I have been experiencing heart arrhythmia, peripheral neuropathy, terrible lumbar spine pain as well as pain/stiff joints all over. It seems to be affecting my kidneys over the last 2 years, my heart (also believed to have caused my Aortic Aneurysm which was discovered 5-6 years ago), my lungs, and entire GI tract.
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Another MRI in 2 months. Hopefully a diagnosis next time. Thank you.