Post-Covid "Organizing" Pneumonia / Long Term Complications

I should also mention that apparently I was "pre-disposed" to complications because I went through chemotherapy last summer for lymphoma (currently in remission).

I was hospitalized in November of 2021 for one week with Covid pneumonia. Was sent home with oxygen. Fortunately I was able to get rid of the oxygen after one week. Took me until May 2022 to feel an improvement in breathing. My breathing is much better now but I am still dealing with dizziness and “tightness”. Currently seeing a neurologist. Hoping you find relief and feel better soon!!

I forgot to add-I turned 57 last month and I was very healthy until I got Covid.

Yes, me too, not counting the lymphoma , which was very well hidden - I had no symptoms whatsoever, felt completely normal, and it came up on a mammogram - turned out I was stage 3 and had no idea. I had a pretty easy time with chemo as well - no issues with nausea or vomiting (the anti-nausea drugs they give you are really great, even though they make you a bit headachy/sleepy). After the 6 month treatment course, I was back to normal. I've always had great BP, low cholesterol, great bloodwork on my yearly health physical for insurance, and I've always been pretty active (I'm a very busy Realtor, married with two sons and I'm always doing one thing or another). To be sitting around not able to work for the last 3 months has been driving me crazy! I hope your dizziness and tightness will ease soon - thank you for your response 🙂

I was diagnosed July 17 as post covid pneumonia from the Er. Breathing is still an issue but the fatigue and nausea are worse. Does anyone else have this? It’s very frustrating and depressing.

@surfdawg22, welcome. Long COVID is definitely a long haul. So frustrating and really hard to be patient with the recovery.

You'll notice that I moved your post to this existing discussion:
- Post-Covid "Organizing" Pneumonia / Long Term Complications: https://connect.mayoclinic.org/discussion/post-covid-organizing-pneumonia-long-term-complications/

I did this so you can connect with other members like @batessa21 @auntb65 and others. You might also be interested in these related discussions:
- Dealing with long COVID and COVID pneumonia: https://connect.mayoclinic.org/discussion/long-covid-covid-pneumonia/
- Has anyone had nausea with the coronavirus or post-COVID? https://connect.mayoclinic.org/discussion/coronavirus-2/
- Any tips to help recovery for a COVID Long-Hauler? https://connect.mayoclinic.org/discussion/long-hauler/

I encourage you also follow Mayo experts in the Post COVID Recovery blog https://connect.mayoclinic.org/blog/post-covid-recovery/

What helps your breathing? Were you given lung rehab or breathing exercises?

I did not experience the fatigue or nausea. My breathing finally started feeling better in May (6 months later). I still notice a difference in my breathing. But I think that is because I pay a lot more attention to it now. My issue now is dizziness.
It is very frustrating! Because I can’t get any answers of why I’m still dealing with issues. All tests I’ve had are “normal”.
Hang in there surfdawg22. Hope you find relief and feel better soon!!

Thank you and you as well. I still amazed how long the this Covid thing lasts. 

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I can’t believe I’m going on 11 months and still dealing with issues. Hoping for relief for everyone soon!!!

@surfdawg22 @auntb65 I haven't had the nausea (fortunately), but definitely the fatigue, coughing, huffing and puffing. My pulmonologist is trying to wean me off the steroids now, which hopefully will help with the moon face and hump back, but I've really noticed my stamina is going downhill. I'm still going to do pulmonary rehab twice a week - they have me scheduled through January. I'm really hoping to be off the oxygen by Thanksgiving - it's really affected my ability to do just about anything. I hope you both find relief soon as well!