I was diagnosed with clear cell endometrial carcinoma in July. It was initially discovered after painful metastasis to hip and sternum, as well as other smaller bone lesions in pelvis and spine. I had radiation to those 2 most painful areas and am now undergoing chemo (carbo-taxol) which I’m tolerating ok. No hysterectomy as they wanted to expedite treatment. Maybe later depending response to chemo. I also need hip surgery due to pathological fracture and bone loss, so in a wheelchair until then.
There seems to be little solid research due to rarity, I’m considered stage IV due to Mets outside of pelvis but moving forward with hope.