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"What is the quality of your "match"?"

Transplants | Last Active: Sep 10, 2022 | Replies (24)

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@hello1234

Hi @windwalker 😊
Did your doctor review your HLA panel with you or did you read it on your portal?
What information did it reveal and why do you think it it "horrible"?
I haven't been able to see my information (or get a copy for my local nephrologist) but I was verbally told that I have "1 in 6 matches".
My local nephrologist told me that Mayo definitely has the information and I should continue to request it for him.

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Replies to "Hi @windwalker 😊 Did your doctor review your HLA panel with you or did you read..."

@hello1234 I believe you and I have the same, as if I remember correctly I have a 5 out of 6 mismatch, but with no adverse reactions. (when our blood was mixed) I think the “no adverse reactions is the most important part. I haven’t had any rejection in my first two biopsies post tx, but will see what happens at my 2 year appointment the end of November. My point is, just because you don’t have a perfect match it doesn’t necessarily mean rejection.
They would not give us the tx if they anticipated rejection. Maintaining their success rate is very important to a transplant center, second only to wanting the best for their patients in my opinion. Hugs to all.

Hello1234, the transplant surgeon went over the HLA results with me. He did say that it would be like finding a needle in a haystack to find a crossmatch for me. I am Class 1 and Class 2 HLA DQ2. That is not a good thing, although, they tell me that the number of the bad antibodies are low enough to not be that concerned about it. But I am. To add to my worry, they had me meet twice with a Palliative Care nurse, which I do not think most transplant see before they are actually listed. If you Google that HLA info I am posting,; you will read that it can be a tricky deal.