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Lymphedema in the neck after laryngectomy

Head & Neck Cancer | Last Active: Sep 8, 2022 | Replies (26)

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@thomason

Dear lynkidd,
I have a tracheotomy after having radiation, covid twice, etc. My vocal cords are bilaterally paralyzed. The lymphedema started up when I began using the humidifier with the chinstrap. Soon, I realized that any sort of trauma--even slight--would bring on the lymphedema. The chinstrap was causing the lymphedema to activate. One ENT had me try a newer type of trach device. it basically looks like a swimming pool plug and has no tube. It is supposed to keep the opening from healing shut. However, since there was no tube, I could not suction out the mucus very well. Also, getting it to "snap" (two little silicone tabs) into the opening, was difficult and painful. After wearing it for a short while, the lymphedema around my trach opening and neck puffed way out. I have learned to be very gentle in that area. So, no more chinstrap, and back to a regular trach-tube. Best wishes to you and yours.

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Replies to "Dear lynkidd, I have a tracheotomy after having radiation, covid twice, etc. My vocal cords are..."

Oh my goodness! my husband has been stating ever since he was told to use things to help it seems to make it worse like, the humidifier? Oh this would NOT be a good thing for him. and the every time Trauma I get it! we find that every time they scope him or go in to look he has swelling problems. Is ENT said there was NO WAY that was causing that!!!! I wish they had true Trach specialist that can help. #tiredofsetbacks