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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Nov 8 5:59pm | Replies (840)

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@colleenyoung

Welcome, Christine. You've got a lot going on with both your leiomyosarcoma and taking care of your dad. I'm tagging fellow members @kathythornjohnson @allsmiles @ventibug and @rred who have experience with leiomyosarcoma and will hopefully join the discussion.

But first to your questions. High intensity focused ultrasound (HIFU) is most commonly used in prostate cancer patients. HIFU is a cancer treatment that uses high-frequency sound waves. You have HIFU from a machine. The machine gives off the sound waves which deliver a strong beam to a specific part of a cancer. This heats and destroys the cancer cells. Clinical trials may be available for some soft tissue sarcomas.

To request a second opinion at Mayo Clinic, you can ask your doctor to submit a physician referral. But you can also self refer. It's easy to get started. By filling out the online form, you will be called back within 3-5 business days to arrange a time to talk with a scheduler. Go to this page to learn more and to see the online form: http://mayocl.in/1mtmR63

What treatments have you had since your diagnosis? Have you had a biopsy of the spot on the lung?

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Replies to "Welcome, Christine. You've got a lot going on with both your leiomyosarcoma and taking care of..."

Thank you @colleenyoung I have requested an appt. I have my pre-op tomorrow at the University but am hoping to get my treatment moved to Mayo! I have been going for CT scans every 3 months since my hysterectomy and was clear up until July 2022. I then had another CT scan 26 August and the spot has grown. I am meeting with the Surgeon tomorrow to see what my options are - I will update you after my appt. I appreciate all of the support and say my prayers for all of those that are in need. Enjoy the day. Christine.