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Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)

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@nhlbob

"But in reality, sometimes that shoe doesn’t drop and you may never have an issue develop." I've researched that and have tried to find other patient cases where this is the case but was unable to locate anythingthing online. I did listen to an LRF podcast with a oncologist by the name of Dr. Laura Pinter-Brown who stated exactly what you're referring to; "A disease may not and does not have to naturally progress from one stage to another." Have you ever heard of a patient with MCL or another type of Lymphoma where this was the case?

Yes, I know I should put that in the 'way back' storage pod in my mind but many times I feel the pod is full and kicks it back to the forefront 🙂 I'm one of those people that is an excessive worrier.

I pray that the IVIG treatments do have an impact on the MCL. That would be a prayer answered.

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Replies to ""But in reality, sometimes that shoe doesn’t drop and you may never have an issue develop."..."

But what if everything goes right?? ☺️ That’s my way around excessive worry. I just don’t let it consume me anymore. It’s important to face your fears. It gives you the control over your future. Anxiety is nothing more than projecting negative thoughts about the future. I’ve written to other members before about What Ifs and how they can just be overwhelming!
So, ‘what if’ your current condition does escalate and that proverbial other shoe drops? You have to ask yourself, what’s the worst that can happen? What do you fear the most about this ‘watch and wait’ diagnosis? Is it the fear that you won’t live? Is it the fear of facing chemo? Life changes? Or??
I went through this with my Acute Myeloid Leukemia. Though I didn’t have the watch and wait period, it just hit like a roaring freight train out of nowhere in 3 week’s time. Statistically it wasn’t good. I’m not a numbers girl so the odds didn’t phase me a bit. Unlike my husband, who is all about stats and numbers…he didn’t share my, ‘Pffft this isn’t going to take me out, attitude’. 3 years later, I’m proof of Better Living through Chemistry and I’m my own statistic. ☺️ I bought myself more time with my treatment and never gave up hope that it would work. I had a goal, and that was to live at all cost. If I didn’t make it, then I had a good run with the knowledge that I fought to the end. It’s pretty satisfying and now I fear nothing. (Ok I’m still not keen on centipedes).
So, if you’re an excessive worrier, what is it you fear the most?