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"What is the quality of your "match"?"
Transplants | Last Active: Sep 10, 2022 | Replies (24)Comment receiving replies
Hello everyone, I'm not sure who will be able to see this as the thread has truncated a bit.
I'm sharing what I see on the portal (Mayo Phoenix) every time I see my TX doctor. Included in his notes is information he looks at each time and updates in order to best take care of my health. I'm able to access this whenever and share with other clinicians when needed.
These are the parameters they look at for that miracle match for each of us. My donor and I matched in nearly every category. And my heart was from a designated "increased risk donor", which could mean so many different things.
So I didn't find this under tests or any other category, but in my doctor's notes that are posted online.
You will see that my heart's EF ratio was at 50 4 months after transplant but regained 'power' by December and now is at 62.
If you have questions let me know.
Etiology of heart disease, and year: Sarcoid cardiomyopathy diagnosed in 2007.
2. Date of Transplant(s): 01/07/2017.
3. Surgical Technique: Bicaval.
4. Pre-Transplant Mechanical Circulatory Assist Device: None.
5. Donor Facts: Ischemic time 148 minutes.
6. CPRA: 0%.
7. Pre-transplant Desensitization: None.
8. Crossmatch Results: Pre: Negative. Post: Negative.
9. CMV status (D/R): Both positive.
10. EBV status (D/R): Both positive.
11. Cocci History: Donor and recipient were both negative.
12. MTB: Negative.
13. Toxo: Donor and recipient negative.
14. Induction Agent: Thymoglobulin, a total of 125 mg divided by two doses.
15. Cellular Rejection Episodes: None.
16. Antibody Rejection Episodes: None.
17. Donor Specific Antibodies with MFI above 1000: None.
18. CAV: Cardiac catheterization on December 20, 2017, demonstrated normal coronary arteries.
19. Graft Function: May 17, 2017 LV ejection fraction 50%. Normal RV function, no significant valve disease. Large pericardial effusion. Moderate circumferential pericardial effusion. EF 60% by echocardiogram December 27, 2017.
20. Opportunistic Infections: N/A.
21. Cancers: None.
22. AlloMap Surveillance Candidate: Yes, but insurance difficulties.
23. Current Immunosuppression Goals: Long-term prednisone for sarcoidosis.
24. Transplant-related Medical Co-morbidities and Complications: Hypertension.
25. Primary Care Provider: Dr. Sheini at La Paloma Northwest Physicians.
26. Primary Cardiologist: Robert L. Scott, M.D., Mayo Clinic.
Replies to "Hello everyone, I'm not sure who will be able to see this as the thread has..."
Yes I have the same thing and it's also a great read to get the actual notes from the transplant itself. Fascinating read and detail of every step during thr surgery. It can take a while to go back that far so i even download some things I found interesting to save to my computer.
Mayo is so up to date on record keeping and all available thru the portal
You are lucky, your donor had a zero rating on the antibodies (which tells me, I think, that donor was never pregnant which is why). Toxo negative for both recipient and donor. Those are really good things that keep you from rejection. I, too, will need (if I understand correctly) a donor that has never had a prenancy in order to not have additional antibodies.
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So I guess I shared a lot of personal info! I thought I had deleted my information out of the document, but oh, well.
Please don't sell my profile to anyone! Haha!