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Yvonne, I can understand that you're afraid to move and feeling like your body betrayed you. It's hard to trust it again especially when you don't have clear indications of what you're dealing with or medical guidance. @sueinmn gave you some great tips and knowledge.
I'm glad you have an appointment with your GP tomorrow. In the meantime, scroll to the bottom of this article from Mayo Clinic
- Interstitial lung disease https://www.mayoclinic.org/diseases-conditions/interstitial-lung-disease/diagnosis-treatment/drc-20353113
At the bottom of the page, you will find question to help you prepare for your appointment. Question you should be prepared to answer and question to ask your doctor.
@SusanEllen66 was also asking about sudden low blood oxygen levels related to vasculitis. You may be interested in reading this related discussion:
- Sudden low blood oxygen levels: Anyone else have Vasculitis?: https://connect.mayoclinic.org/discussion/sudden-low-blood-oxygen-levels/
Let us know how your appointment goes tomorrow.
Replies to "Yvonne, I can understand that you're afraid to move and feeling like your body betrayed you...."
So my appointment was over the phone, I didnt realize it was booked that way until the doctors office called to confirm beforehand. I told him about my sats, and that they are still the same as in hospital. He asked if I had arthritis feeling fingers I said no. He checked me for autoimmune type disease as I once thought I had fibromyalgia. He said there were no markers in my bloodwork to indicate autoimmune anything. He asked am I fatigued. I said no. If I could get up and clean house and shop, I've got energy! He asked if I'm losing weight. No it's the same. Am I coughing? No I'm not. Are my fingers arthritic or clubbing? No they are normal. And no blue nor red fingernails.
Dizzy when up? No.
I just see my sats go into the high 80s no blue lips no gasping for air.
So he did not put me on any new medications.
I'm only on a blood pressure pill and a stomach acid reducer.
So he did say he'd like to see me next week to listen to heart and lungs so he has a baseline to go by. In hospital, all heart lungs were clear when listened to and there was no decreased entry sounds as there was during the beginning of my stay. Any ideas ? Oh and he asked about headaches. No I dont have headaches.
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I havent gone out since coming home from hospital so this is a first. If I find myself out anywhere, and out of breath, what's best? Just find a chair until my normal breathing and sats come up?
Just going to the washroom a few minutes ago and my sats fell to 88. Glad my bed was close!