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Anyone else have Mantle Cell Lymphoma?
Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)Comment receiving replies
That’s wonderful news that your numbers are lower than first considered. I know, watch and wait can be a little hard at first. It’s like you’re waiting for the proverbial ‘other shoe to drop’. But in reality, sometimes that shoe doesn’t drop and you may never have an issue develop. If so, you’ll have been monitored regularly enough to catch anything early. So at this point, I’d put that in the ‘way back’ storage pod in my mind.
Getting started on the treatments for the CIDP will be a relief for you! Hopefully it does have an impact on the MCL. Win/win! If you return to Mayo, all the better. You’ve had a great experience there, with the confidence and trust level pretty high. Though I know that’s quite a trip from Thailand for treatment! Keep me posted, please?
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"But in reality, sometimes that shoe doesn’t drop and you may never have an issue develop." I've researched that and have tried to find other patient cases where this is the case but was unable to locate anythingthing online. I did listen to an LRF podcast with a oncologist by the name of Dr. Laura Pinter-Brown who stated exactly what you're referring to; "A disease may not and does not have to naturally progress from one stage to another." Have you ever heard of a patient with MCL or another type of Lymphoma where this was the case?
Yes, I know I should put that in the 'way back' storage pod in my mind but many times I feel the pod is full and kicks it back to the forefront 🙂 I'm one of those people that is an excessive worrier.
I pray that the IVIG treatments do have an impact on the MCL. That would be a prayer answered.