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Transplant: BK Virus

Transplants | Last Active: Apr 16 10:39pm | Replies (120)

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@hello1234

Hi @windwalker 😊
I am so happy to hear that your local doctor referred you to Mayo back in 2013 which has been slowing your progressive lung disease by many, many years...that is so great to hear! My co-worker just received a double lung transplant at Tampa General and he is beyond thrilled with the results. So, if or when you need a lung transplant, I am sure you will be celebrating the positive results just like he is.
He sent me a photo last week of him and his wife at a fancy waterfront restaurant in Florida celebrating. It was very touching to see their smiling faces and how wonderful they looked enjoying his new lease on life!
I will definitely be updating my BK virus status in the weeks and months to come and staying in touch... (Hopefully posting some declining BK viral numbers!)
Thanks so much for reaching out and making contact....I really appreciate it!

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Replies to "Hi @windwalker 😊 I am so happy to hear that your local doctor referred you to..."

Hi @cmael
I forgot to ask you. Now that you are finally negative for BK virus (YEAH!!!), was your Cellcept raised back to 750mg bid or is your new maintenance meds schedule now 500mg bid Cellcept with your Tac and Prednisone?