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Myelin Oligodendrocyte Glycoprotein (MOG)

Autoimmune Diseases | Last Active: 1 day ago | Replies (9)
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@lisabethy

Hello, my 22 year old daughter was diagnosed with MOGAD a couple months ago. We are learning about possible treatments like IV IgG. What have you done since you were diagnosed? Her biggest issues now are fatigue and trying to prevent future flare ups.

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Replies to "Hello, my 22 year old daughter was diagnosed with MOGAD a couple months ago. We are..."
John, Volunteer Mentor | @johnbishop | Sep 7, 2022

Hello @lisabethy, Welcome to Connect. Unfortunately the member who started this discussion, @kwitty131, is no longer following Connect and probably did not see your post. I know it has to be difficult dealing with such a rare disease. You may have already seen the information posted on the National Organization for Rare Diseases which lists the standard therapies and other treatments but I thought I would share the site just in case.

-- MOG Antibody Disease: https://rarediseases.org/rare-diseases/mog-antibody-disease/

Have your daughters doctors offered any suggestions on which treatments might be the most effective?

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gypsy69 | @gypsy69 | Oct 30, 2022

Look at the MOGProject website. They also have a great FB page. If you need help finding it let me know. Hugs to you and your daughter!

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