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Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)
Infectious Diseases | Last Active: Apr 3 9:28pm | Replies (28)Comment receiving replies
Similar to many of you within this group, I have found that I have never been successful diagnosed nor had any successful treatment. I have been diagnosed with autoimmune diseases; hashimoto's disease, rheumatoid arthritis, thyroid disease, etc. It was thought that I had lymphoma for a few months and keep testing for it. It seems clear that I have chronic EBV as my AG AB IGG result of over 600 and have continued to climb over the years.
Does anyone have any good doctors to recommend in the Phoenix/Mesa area?
I am looking into the Mayo clinic and chronic EBV specialists in this area, so if anyone has any info that would help I would greatly appreciate it! Infectious disease specialist, immunologist, hematologist and naturopathic doctors are other routes I have looked into, so if you have any highly rated docs, please send my way. Thank you for your help and sending good vibes out to all those on here who are also suffering.
Replies to "Similar to many of you within this group, I have found that I have never been..."
There are no doctors in Arizona, including infectious disease doctors, who treat EBV or CAEBV. There are functional doctors/natural paths that will take your life savings in an attempt to treat it and you will be right back at square one, just poorer. You can join stuffthatworks.org which is a CAEBV support group and all who travel and spend their money trying help from Natural Paths are now broke and still sick and some even sicker. OZONE therapy is a big one everyone seems to be trying and after $10K, 40 treatments, they are back in the same boat. It sucks and I am sorry that this is all a negative response, but the truth is the truth even if it is negative. I put my faith in Lord Jesus Christ to get me through and He has not let me down. He made sure I had all I need. Although we suffer it is all temporary. I am letting nature take its course and getting ready for heaven.
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Hi @bbresson, welcome. I moved your question about recommendation for EBV specialists in the Phoenix area to this existing discussion:
- Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV) https://connect.mayoclinic.org/discussion/ebv-chronic/
I did this so you can connect with other members like @bt123 @kefnb @tricia13 @seehawkeye @mrmie @cknight @lesd70 who may be able to provide recommendations and answer questions for you.
You might also be interested in this related and active discussion:
- Treatment for chronic Epstein-Barr virus (EBV) https://connect.mayoclinic.org/discussion/treatment-for-chronic-epstein-barr/
Bresson, If Mayo Clinic is an option for you, here is more information about how to submit a request for an appointment online: http://mayocl.in/1mtmR63
It sounds like you might benefit from the multidisciplinary approach of Mayo Clinic.