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New and undiagnosed

Lung Health | Last Active: Dec 12, 2023 | Replies (131)

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@yvonne55

I never had a lung issue in my life. I'd driven my granddaughter to the beach, came home and suddenly my back felt on fire! There was no air and everything was going black. I remember the paramedics vaguely. I was given 100% oxygen and tossed in the ct machine. Then to the ICU. I dont recall day 1. Later I was put on an evo? for air. Big tubes with water rushing through. I was there for 4 days as although I could use the commode beside my bed, I would de sat by the time I'd finished and laid back down. Then nasal prongs on 6 litres 02 and put on a Ward. They weaned me off the oxygen completely in the next 5 days and sent home. My own doctor was not involved but just sent info from hospital doctors. They ruled out covid and pneumonia. I was on a ton of antibiotics and prednisone but nothing really made a difference. I had no mucous and white cell count normal. No one knows. All I have is an appt in 3 months for another ct.
My sats are ok if I go very slow. They seem to dip most when I sit back down. I'm now on a cpap which last night I put my oximeter on and my sats were 85.
I did have pneumonia 20 years ago but no one said anything after I recovered and never had an issue.
There were no discharge orders other than I will be called for a ct appointment and I can return to work Sept 18! That's not happening! I have an appointment with my gp tomorrow and have been put on small doses of ativan because I'm panicked to move. Will this get better? Is this as good as it gets? I'm a grandma of 9 and still working in the medical field. Is that done? So many questions. No answers. Thank you for reading!

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Replies to "I never had a lung issue in my life. I'd driven my granddaughter to the beach,..."

Yvonne, I can understand that you're afraid to move and feeling like your body betrayed you. It's hard to trust it again especially when you don't have clear indications of what you're dealing with or medical guidance. @sueinmn gave you some great tips and knowledge.

I'm glad you have an appointment with your GP tomorrow. In the meantime, scroll to the bottom of this article from Mayo Clinic
- Interstitial lung disease https://www.mayoclinic.org/diseases-conditions/interstitial-lung-disease/diagnosis-treatment/drc-20353113

At the bottom of the page, you will find question to help you prepare for your appointment. Question you should be prepared to answer and question to ask your doctor.

@SusanEllen66 was also asking about sudden low blood oxygen levels related to vasculitis. You may be interested in reading this related discussion:
- Sudden low blood oxygen levels: Anyone else have Vasculitis?: https://connect.mayoclinic.org/discussion/sudden-low-blood-oxygen-levels/

Let us know how your appointment goes tomorrow.

I’m so sorry you are going through all of this.
My oxygen levels are normal now. The pulmonologist I saw at Mayo Phoenix believes that the ground glass opacity as shown on the CT scan was a direct result of one of the medications I was taking for my Vasculitis. The Rheumatologist is sure it was the methotrexate.

I hope you get some answers soon! Please keep in touch.🌻