← Return to Anyone else have Mantle Cell Lymphoma?

Discussion

Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)
Comment receiving replies
@loribmt

Good morning, @nhlbob It’s been about 2 months since we connected last and I’ve been wondering how you’re doing? Were you able to get some encouraging news from your trip to the clinic in July? Any news on whether you’ll need a SCT or not?

Jump to this post

Replies to "Good morning, @nhlbob It’s been about 2 months since we connected last and I’ve been wondering..."
nhlbob | @nhlbob | Sep 7, 2022

Hi Lori, thanks very much for your message! Being at Mayo was very encouraging. After my doctors received and reviewed my biopsied tissue, the Ki67 came back at 10% (which is considered low) and which was lower than what the pathologist in Thailand had determined (they had it at 20-30%). Mayo also ran FISH and TP53 and I didn't have the deletion which is also very favorable. Since I don't have any B symptoms, my oncologist suggested watch and wait. It's a little scary and worrisome.

I'm also dealing with a CIDP diagnosis and I saw a Mayo neurologist who ran tons of testing and is wanting me to start IVIG treatment for 4 months to see if there is any improvement. My oncologist mentioned that there might be a possibility that it could have some benefit with the MCL. So, I'm working towards starting the treatment asap. In fact I might even return to Mayo to have it done there.

How have you been?

VIEW AND REPLY