Hello! First congrats on your transplant! Second, you should never worry about reaching out to your coordinator about anything, that is what they are there for for sure. You definitely want to let them know about any reactions you have to meds regardless of what it is, and diarrhea is absolutely one of them. As far as the heartburn goes, I can empathize with you 100%. I have found that Protonix did absolutely nothing for me in terms of heartburn relief so they were fine letting me take Omeprazole, aka Prilosec. For me it works much better. Just make sure you run it by them first, along with ANYTHING else you take before taking it. That includes TUMS. In fact in some cases they will tell you NOT to take TUMS, or any other antacid that is similar. Write your coordinator soon to check on these things and I guarantee you she’ll have you on track quick and you will be good to go! My rule, as it is for many, is that NOTHING goes in my mouth unless it is approved by them.

Incidentally, I was originally transplanted in early May, but due to an unforeseen biliary issue with the liver I just went through my second transplant about 10 days ago. Since I’m on round two it has absolutely affirmed my belief that the Mayo crew are there for us, in anyway we need them. Use them whenever you have access to them, they have critical knowledge to help keep you going!!

Again, congrats and here is to your great health. I hope to hear back on your progress, hang in there!!

Bryan