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"What is the quality of your "match"?"
Transplants | Last Active: Sep 10, 2022 | Replies (24)Comment receiving replies
Hi @estrada53 😊
Thank you so much for jumping in! I looked through the lab and test results on the patient portal and told my local nephrologist that I couldn't find it. Is this information located under a different category or labeled differently on the patient portal?
If you could help me with finding this information on the portal for him that would be wonderful! I have an appointment with him on Monday 😊
Replies to "Hi @estrada53 😊 Thank you so much for jumping in! I looked through the lab and..."
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Estrada53, you can ask your transplant team to post it in the portal for you. Sometimes, you have to hunt and peck to find test results because there are abbreviations etc for labwork and you may not recognize it for what it is. I didn't see my Labwork for HLA in my portal, but when I shared my portal with a doctor from a different institution; he was able to pull up that info. from my portal. It may be that only certain things get posted on the portal for our laymen eyes. You should ask your team member about it. It is good info to know, especially if you get offered a less than desirable organ, you can always say no to it.