Connect
← Return to "What is the quality of your "match"?"
Discussion
"What is the quality of your "match"?"
Transplants | Last Active: Sep 10, 2022 | Replies (24)Comment receiving replies
Hello everyone.
@hello1234, you ask an important question because much of recovery and health is influenced by the donor/recipient match. I am a heart transplant recipient from January 2017.
I am able to see the HLA panels, how long the heart was out of the donor's body before transplant, and other interesting facts in my account on the Mayo portal. I don't remember receiving any packet, but the doctors knew I always use the portal.
Have you checked information on the portal?
Ellen
Replies to "Hello everyone. @hello1234, you ask an important question because much of recovery and health is influenced..."
Did you have your transplant done at the Mayo in Rochester? I had heard that at Roch, one can also see the removed organ after you are well enough to have it explained what was very wrong with it. They do not do that at the Florida Campus. I am going to ask at some point that they do it as well. I would love to see my lungs and see WHY they gave me such a hard time all of my life. As Dezi Arnez would say "They got some 'splainin' to do."
Connect
Hi @estrada53 😊
Thank you so much for jumping in! I looked through the lab and test results on the patient portal and told my local nephrologist that I couldn't find it. Is this information located under a different category or labeled differently on the patient portal?
If you could help me with finding this information on the portal for him that would be wonderful! I have an appointment with him on Monday 😊