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Does anyone have Birt-Hogg-Dubé syndrome (BHD), genetic lung disease?

Lung Health | Last Active: Jul 5 12:00pm | Replies (26)
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@dc1950

I post this from time to time, wondering if there are any suffering from BHD Lung Disease? Thank you.

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Replies to "I post this from time to time, wondering if there are any suffering from BHD Lung..."
Colleen Young, Connect Director | @colleenyoung | Sep 6, 2022

Great idea to occassionally bump this discussion back to the top, Donna, so that any new members with BHD will know you're here and willing to connect.

How are you doing today?

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jeff72 | @jeff72 | Jul 5 12:00pm

Hi Donna, I was diagnosed with BHD about 12 years ago. I’ve had several small pneumothorax's in my left lung. The most recent was this winter which has healed. I’ve had consistent problems with phlegm, and tight lungs. My pulmonologist has put me on multiple rounds of antibiotics and steroids. I’m wondering what kind of respiratory symptom's you’ve experienced

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