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MGUS: Please, let me know I not alone
Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)Comment receiving replies
Besides these ? ( I actually do not know how to refer to any of the things that are being discovered “ accidentally “ if I can use that term. A cervical MRI revealed “ lumps “ on my thyroid, cat scan of thyroid lead to biopsy, which resulted in this chapter about MGUS. No one mentioned it before or after the biopsy. And MGUS articles suggest that MGUS is more likely to be discovered while doing tests for other things.
I apologize if I’m repeating myself. That said it sure seems that everything of late is discovered “ by accident “ as I like to say. But one thing that makes everything more troubling is that no one seems to jump in and take control.
My tendency to turn people off with my long letters doesn’t help me get proper info. If I could learn some rules or tricks to say only what needs to be said maybe I can learn how to summarize things. But I admit that a racing mind is difficult to train.
I thought that I posted one of those extra long letters lamenting how I got to this place.
Today I’m on my way to Duke Radiology for a 4D cat scan.
Examples of why my letters get so long might be a byproduct of details and consequences compounded by delays in processing.
If I simply listed symptoms that I’m dealing with maybe that can help. Any thoughts on that idea?
SOU
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I have thyroid nodules..more every year...was told Hashimotos disease..no treatment...also take d2...no idea why! Wonder now if any of this relates to mgus. D2 for osteoporosis I guess but no falls, fractures or pain!! Thank God!!
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@stuckonu A gentle reminder that we are not medical professionals here. We are fellow patients, caregivers, and family members. While you may feel the length of your posts turn people away, that may not be the case. If a member does not have the same experience, or cannot come up with words of support for you, it's not turning away. Perhaps if you type out a post in a word document, then go back to it to edit after stepping away, you will see places where you can trim down the post. Do that, then cut and paste into your posting space. Do you think that might work?
Many times a new health concern may be brought to light in running different tests. I think that a medical professional who is versed in one specialty may not want to take a stab at something he/she is not familiar with. They might or might not feel the new item is something to be investigated.
I hope your scan today results in easing some of your concerns.
Ginger