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MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)
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@gingerw

@colleenyoung Thank you for tagging me in to this. My path to MGUS was a little different, since I already had impaired kidney function and was watching calcium and protein levels levels. It was my nephrologist who saw something in the combination of lab work results, and sent me on to a hematologist oncologist. MGUS may be a precursor to something more serious, but many times it is not. It is formally diagnosed with specialized testing. @stuckonu, does that old report say which abnormal protein is being referred to? In my opinion, and yours may vary, I would ask to get a referral to a specialist, possibly hematologist-oncologist, for additional testing. It sounds like there has not been a definite diagnosis, only a reference to a possible condition, so for peace of mind please wait until there is a formal diagnosis.
Ginger

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stuckonu | @stuckonu | Jan 25, 2020

Besides these ? ( I actually do not know how to refer to any of the things that are being discovered “ accidentally “ if I can use that term. A cervical MRI revealed “ lumps “ on my thyroid, cat scan of thyroid lead to biopsy, which resulted in this chapter about MGUS. No one mentioned it before or after the biopsy. And MGUS articles suggest that MGUS is more likely to be discovered while doing tests for other things.
I apologize if I’m repeating myself. That said it sure seems that everything of late is discovered “ by accident “ as I like to say. But one thing that makes everything more troubling is that no one seems to jump in and take control.

My tendency to turn people off with my long letters doesn’t help me get proper info. If I could learn some rules or tricks to say only what needs to be said maybe I can learn how to summarize things. But I admit that a racing mind is difficult to train.

I thought that I posted one of those extra long letters lamenting how I got to this place.

Today I’m on my way to Duke Radiology for a 4D cat scan.

Examples of why my letters get so long might be a byproduct of details and consequences compounded by delays in processing.

If I simply listed symptoms that I’m dealing with maybe that can help. Any thoughts on that idea?

SOU

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