← Return to MGUS: Please, let me know I not alone

Discussion

MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)

Comment receiving replies
@colleenyoung

Hi @stuckonu, you'll notice that I moved your message to an existing discussion where you can connect with other members talking about MGUS. You can sort the discussion by newest to oldest to see the recent posts first.

You may also be interested in these related discussions
- MGUS and osteoporosis? https://connect.mayoclinic.org/discussion/mgus-and-osteoporosis/
- I have MGUS https://connect.mayoclinic.org/discussion/i-have-mgus/

Having discovered the possible diagnosis of MGUS in your medical record, you ask a great question of community members like @1nan @gingerw @anniemaggie @susangs @momofthree1. You asked "what should I know about MGUS that I may not have read on the internet?"

Jump to this post


Replies to "Hi @stuckonu, you'll notice that I moved your message to an existing discussion where you can..."

@colleenyoung Thank you for tagging me in to this. My path to MGUS was a little different, since I already had impaired kidney function and was watching calcium and protein levels levels. It was my nephrologist who saw something in the combination of lab work results, and sent me on to a hematologist oncologist. MGUS may be a precursor to something more serious, but many times it is not. It is formally diagnosed with specialized testing. @stuckonu, does that old report say which abnormal protein is being referred to? In my opinion, and yours may vary, I would ask to get a referral to a specialist, possibly hematologist-oncologist, for additional testing. It sounds like there has not been a definite diagnosis, only a reference to a possible condition, so for peace of mind please wait until there is a formal diagnosis.
Ginger