Hi Cindy. I’ve gone through every test you can imagine I’ve had this since birth and I’m 72. Doctors have all told me it’s something else. I’ve had everything from my tonsils removed to allergy shots and things in between. My suggestion is you go to an otolaryngologist. I went to one at USC Keck medical Center named Dr. Johns. He knows what LSN is some doctors are just learning about it. in Japan they have medication for it which was not yet approved here. Merck Pharmaceuticals is going to revisit the testing. I wrote a long thing about it and I don’t know if you read it or not but I wrote things in detail. Right now, I’m taking Pre-Gabalin which is Lyrica. But there are other things starting with Amitriptyline that you can try and your doctor will know. Dr. Johns knows. I don’t know where you live so I don’t know if that’s close to you. Private message me anytime.