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bonnie canby (@bonniecanby)

MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: Jan 19 5:56am | Replies (86)

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@oldkarl

@bonniecanby You should know that the symptoms you mention, anemia, pvc’s and lots of pain, are typical amyloidosis symptoms and signs. You are free to download/read my story at https://bit.Ly/1w7j4j8 i have about 200 symptoms & signs of amy. Of course, some may be related only secondarily, but they all spoken of by current literature. Morey Gertz of Mayo, and the Amyloidosis Foundation.com, and Alnylam Pharmaceuticals and other sites you can read. It is much easier now to diagnose and define various forms of Amy, incluging MGUS, MM, AL, Alzheimers, Familial fatal insomnia, etc. Today’s great clinics and labs can help you, but very few local labs can do anything. Mayo-MN, ARUP, Sloan-Kettering, Mass-General, Stanford, etc. can do it.

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Replies to "@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are..."

I am going to mayo on fri. for a surgical consult. here in az. Thanks for your info. Maybe they will recheck the blood results from Illinois.

Hello @bonniecanby, you mentioned awhile back that you were having a surgical consult? If you don't mind sharing, how did it go?

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