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MGUS: Please, let me know I not alone
Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)Comment receiving replies
MGUS has a long name and what it means is that there is an extra M protein in your blood. I was diagnosed with this about 5 years ago and my blood is checked every 6 months to make sure that the protein level is stable. I have no special diet or any treatment. I see a hematologist/oncologist for monitoring. If the protein level changes, then further testing is needed. Yes it is kind of like a time bomb, but I have my faith and that allows me to keep going.
Replies to "MGUS has a long name and what it means is that there is an extra M..."
Sounds like me! No pain...kind of forgot I was diagnosed with mgus!! Have other health issues but compared to all my friends who do not have mgus, I am doing the best of all of us!! I just attribute some issues to older age!!! Go in Every six months. for blood work. No tests on bone marrow etc. Mainly I get tired day after I have done anything g extra! Used to have numbness in legs but that disappeared .
I was diagnosed with MGUS 3 years ago after more than a year of low grade anemia. I see a hematologist oncologist as well. I had a bone marrow biopsy to confirm the diagnosis but have no treatment or special diet. My bloodI was originally tested every six months but since my protein level has been stable since diagnosis I now am tested once a year and I see the doctor to discuss the results. Frankly I sometimes forget I have MGUS. If it turns into multiple myeloma I will get treated but I don’t worry about it since there is nothing I can do Your post was helpful since many of the other posts seemed to be having a lot of concerns regarding the diagnosis. Your journey with MGUS is very similar to mine. Thanks
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Hello @billh,
It has been awhile since you have posted. I just wanted to know how you were doing with your MGUS? We have some new members who may be interested in hearing from you and your experience with your journey with MGUS.