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Low T-Cell - Bone Marrow Biopsy

Blood Cancers & Disorders | Last Active: Nov 15, 2022 | Replies (162)

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@mariabrat

@loribmt no worries ! I just wanted to make sure you were alright, really 🙂 glad to hear from you

Well, I’ve mentioned to the doctors (not that one) but the previous one at the ER my family history and they seemed to think that as a woman it’s not the same risk at all. They said that on the CT scan they saw the main arteries and it was fine but my dad heart attack was on the small one. I asked my dad again and he only did the cardio test with ultrasound (the one I will do on Wednesday) 10 years ago. He was just doing the regular running test every year and they missed it.

I am taking Ativan, trying half, its helping a bit but I still feel my weird heartbeats. One is better. But I’m scared to become addicted in a few weeks. Also Im taking sometimes 1-2 beers but worried its not a good idea. The pharmacist said it’s ok but not too much as I might become drunk.

Im supposed to go camping for 2 days with my sister 45 minutes for the city tomorrow and I’m super anxious that something will happen to me. Again the doctor seem not to think so but I’m worried about sudden cardiac arrest with all my issues. The doctor seem to say it’s not autoimmune as there are no fluid around the heart so that something else.

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Replies to "@loribmt no worries ! I just wanted to make sure you were alright, really :) glad..."

Aw thanks for checking in. Other than me apparently not seeing postings right in front of my face, I’m perfectly fine. 😂. I still don’t know how I missed your reply.
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I know how anxious you are about possibly having a sudden cardiac arrest. You do feel a little better being on the Ativan though you can feel some irregular heartbeats. But since taking the Ativan, have you had any of these really upsetting episodes? While it can be addictive with longterm use, for now if it’s working for you it’s ok to use. Just stick with the smallest dosage as needed. Ativan stays in the system longer than Xanax. So it will require less pills because it will provide anti anxiety for a longer period.

I hate to see you missing out on some of these rare moments such as getting to spend time with your sister camping for 2 days because of ‘what ifs’. Thinking of our mortality can certainly instill fear. But it can also paralyze us from enjoying the life we do have. ‘What ifs’ can rob us of quality of life and it’s wasted, negative time. I’m one of these people who would rather pull off the bandage with one zip…meaning I’d go and enjoy my life and push that envelope of comfort. Either something will happen or it won’t. And most often, what we fear most never happens.
Your doctor has been pretty reassuring with saying she didn’t feel this would lead to a sudden cardiac arrest. I’d be inclined to go camping. Your sister is aware of your medical situation and she seems comfortable with taking you. I think this could be some good bonding and relaxing time with your her and a break from the norm!
What you can do is have a plan. 45 minutes from home isn’t very far. See where the nearest ER is located just in case and then try to enjoy some girl time with your sister. Does that sound feasible?