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bonnie canby (@bonniecanby)

MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)

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@anne1960

<p>My red blood cell count is 3.75. I have MGUS- precursor multiple myeloma. I do not feel well tired. My oncologists says my count is normal, I. Disagree, I feel well when it is around 4.25. @rowanwolfe</p>

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Replies to "My red blood cell count is 3.75. I have MGUS- precursor multiple myeloma. I do not..."

I also have MGUS and it sucks. I get the run around at Roger Maris Cancer clinic where I go. Please stay in touch I would like to chat and perhaps exchange ideas

I thought you might be interested, I have run a red cell count of 3.75-4.00 most of my life (I am now 92). I have been diagnosed with MGUS this past year (because I developed Trigeminal Neuralgia) and was sent for some additional lab tests. I have had two additional testings, and they tell me if my next one is normal or about the same I only need to be seen once a year. Prior to this new diagnosis there was never a mention of Multiple Myeloma. Hope this may give you some peace of mind. I think you have a very long life ahead of you. Start enjoying the precious moments, and let the years take care of themselves.
Gina5009