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bonnie canby (@bonniecanby)

MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: Jan 19 5:56am | Replies (86)

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@j42smith

Hi,
Is there anyone out there that can help me get some insight into the disease. My father was just diagnosed monoclonal gammopathy, and i’ve read some literature, but I want to talk to someone who has actually had a loved one go through the same thing. The doctors are not offering any treatments for him, because of his diabetes, and renal failure. He also has a clotting disorder. The doctors also told us that they do not recommend him for chemo with all of his other health issues.

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Replies to "Hi, Is there anyone out there that can help me get some insight into the disease...."

Hi. I lived with monitoring MGUS from 2002 until 2004, then followed my smoldering myeloma until I needed treatment in 2016. I saw my physician at Mayo in MN annually, and my local hematologist/oncologist in between. The two doctors communicate about my condition, changes, and treatment. Yes, they actually talk to each other! In June I will be starting my second year of treatment for Multiple Myeloma.I would suggest getting established with doctors you trust, and stay informed about all aspects of your options and treatment. My faith allows me to stay on this journey with no fear. I hope you can make a consult happen, then have care providers who work together and give you confidence in your decisions. This does not have to be "awful". Good luck.

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