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Lung Transplantees: Let’s connect

Transplants | Last Active: Sep 7, 2022 | Replies (20)

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@chickytina

I would say enjoy the time before, if you can do the things you won't be able to after. Like having grapefruit, sushi (or anything from where they make sushi or ceviche), meat cooked anything other than medium-well to well done. Also being able to smell flowers. I look at them when I go for my walks, but can't have plants or flowers.
I hope that you are not in too much discomfort. I know I was out of breath with someone else pushing me in a wheel chair even on 6 liters. I wasn't able to complete a sentence without gasping for air. I hope that you don't get as bad as I was before you get your transplant.

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Replies to "I would say enjoy the time before, if you can do the things you won't be..."

Ha ha, girl, I did just that! I went out and had a 18 steamed oysters on the half-shell. I have been slowly letting go of my love for gardening as well. It is dangerous for me to do it even now prior to lung transplant because I have a low immune system and I tend to catch environmental organisms that give me serious lung infections. I am dreading the day when I am severely hampered by shortness of breath. Prior to your transplant, were you seen by a palliative care nurse too?