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Immune Thrombocytopenia Purpura (ITP): What helps?
Blood Cancers & Disorders | Last Active: Mar 19 5:50am | Replies (155)Comment receiving replies
Thank You Colleen, if the platelets were up I would be in the process of getting into Mayo. Do you know if there is a certain location of theirs that specializes in ITP? We are in Illinois but could travel to either one. Since I am a rare case for the hospital hear I did ask if a consult with Mayo could be an option and perhaps they have seen cases like mine. Each oncologist I have seen has asked me about the Covid vaccine. My guess is they think there may be a link?? I also ended up having to get a pacemaker not too long after getting the vaccine and booster. Thank You so much for all your help and support it is greatly appreciated.
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Jimmy, hematologists specializing in ITP are available at all 3 Mayo Clinic locations and in the Mayo Clinic Health System.
Welcome @tammielou and @julesknox, interesting that you were both diagnosed with ITP at ages 9 and 8, respectively and found different effective treatments. Like Tammie, @treslynetteaba also had a splenectomy and Jules had intravenous immunoglobulin therapy (IVIG). Jules, I'm glad that this IVIG has had a long lasting effect for you.
Are there any precautions that you still take having had thrombocytopenic purpura?