I have exactly the same condition and my parents did , my sister does and her daughter. And my daughter has to get iron shots and blood transfusions. I go for iron treatments yearly. We all have HHT. My brother who died at 70, actually went to the hospital for days. He had his nose cauterized so many times that it ruined the inside of his nose. My gastrologist performed the basic tests (stomach & colon) had me swallow a camera and actually saw bleeding in my small intestine.