Eliminating Foods for Neuropathy pain

Your welcome, yes it was years to get the correct diagnosis and many, many doctors, I had many test redone 3 or 4 times, everything in my body was MRI looking for the answer. Then finally a real diagnosis non-length small fiber Neuropathy. Had my second skin biopsy with John Hopkins gave me what I was looking for. I have found out many people have gone thru what I have, I thought I was alone and a bit crazy. With that said, the treatment is the same. Idiopathic I have tried acupuncture and massage, didn't do much for me. Could for you even for a few hours. The night time is the worst, I think that is because the body is at rest. I don't really have much numbness, well at least I can tell.... LOL Have a good day, stay positive and move forward.

@bumper123 Hello and welcome. I'm Rachel, it's nice to meet you. I like your identifying flower photo!

Thanks for joining the conversation and sharing your health journey. It's fair to say you felt a bit crazy...me too, and many others who strive for a diagnosis, let alone the correct diagnosis.

I did feel sad when you said "you feel deflated at times" because I know that feeling and empathize. On the flip side, I commend you for your positive approach and encouragement of others despite your struggles.

What would you say is the main reason you came to Connect? After having failed treatments, it appears you're at the stage of trying to find acceptance while searching for a pain management plan. Am I close?

H Rachel, yes you are right. Any new research I would be interested in or pain management suggestions would be welcomed. I found this site by chance, every once and a while everyone needs a little compassion and understand of this neuropathy. Thanks for your response I appreciate any suggestion.

Well, back in my early SFN diagnosis days, I was recommended a book, Small Nerves, Big Problems written by a collaboration of doctors. Some Mayo doctors, and ironically my neurologist from NY (he recommended it - go figure). Here's a conversation about the book:
https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-book/

It was a guide for me before attending Mayo Clinic's Pain Rehabilitation Center. Have you ever given thought to a pain rehabilitation program?

Rachel: I have this book as well, I have been dealing with this for 12 years. I do appreciate your thoughts. I have never heard of Pain Rehabilitation Center?

Thank you, I have looked on some other links for information, its nice just to talk to someone once in a while who might understand. It is hard to tell where I stand in this journey. I know my pain is real its not in my head, I worry about what the future will be, will i be shrivel up like a prune unable to walk. I have to move forward, just looking for a better quality of life. Thanks so much

That is no doubt a big factor in mine too…All the things I Love

Yes, I used to be addicted to Diet Coke. Now I’m on anti inflammatory diet. Haven’t given up morning coffee yet. But will try. Found that gluten free bread is great. Eating more vegetables, very little sugar. My feet are still burning but not as much sharp pain

I'm trying an anti-inflammatory diet as well. No caffeine, lots of vegies, lean grass-fed meat, fish, chicken & turkey without the skin. colorful fruits (berries especially), no eggs, dairy products or gluten. Trying to follow "The Wahls Protocol" by Terry Wahls, M.D. who has multiple sclerosis (an autoimmune disease) and has managed to bring herself back from being almost bed-ridden to working full-time. My neuropathy/CMT seems to be caused by mitochondrial dysfunction (mutant FBXL4 and SDHB genes), but I have not been tested for autoimmunity (not looking forward to it). The mitochondrial dysfunction causes reduction of cell bioenergetics, i.e., your cells don't have enough ATP to fuel daily cellular biochemical functions. Mitochondrial dysfunction also generates lots of free radicals, which can trigger cancer. The anti-inflammatory diet can neutralize excess free radicals. I'm 2 mos into the diet and the swelling in my feet has been reduced, but the pain hasn't yet. Stay strong and soldier on.

What’s ATP?

One hour at a time. Pain management is a full time job! I’ve been in a walker twice, hopefully it doesn’t happen again!👍