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Post pulmonary embolism problems

Lung Health | Last Active: Sep 4, 2022 | Replies (19)

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@jwb1948

I am 73 and had bilateral pulmonary embolism. A clot in each lung! I was hospitalized for 3 days and told by the Hospitalists that I would be discharged and continue on Xarelto. I started taking it in January and other than some frequent bruising, I did fine. I just requested a refill and found out I am in the donut hole with my insurance and Medicare. Due to the high cost of Xarelto I switched to Warfarin and was set up with home testing. My INR hit 2.3 which my clinic said is good. I feel LOUSY though-fatigue, nausea, headache, and very easy bruising. I feel short of breath but oxygen is always 91 or 92. I can hike and exercise without getting real short of breath. I do drink 2 or 3 beers a day with Dr. Approval. No bleeding. Anybody try Warfarin and feel as bad as I do?

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Replies to "I am 73 and had bilateral pulmonary embolism. A clot in each lung! I was hospitalized..."

Hi @jwb1948, you'll notice that I moved your question about bilateral pulmonary embolism and feeling lousy on Warfarin to this existing discussion:

- Post pulmonary embolism problems: https://connect.mayoclinic.org/discussion/post-pulmonary-embolism-problems/

I did this so you can read through the previous helpful posts and connect with members like @agbrogers @mark_fugate @mbalcala and others.

You may also be interested in this related discussion that @thankful started about warfarin:

- New to Warfarin. Any helpful advice?: https://connect.mayoclinic.org/discussion/new-to-warfarin-any-helpful-advise/

JWB, if you're not tolerating warfarin well, might there be another alternative to Xarelto? Or might your pulmonologist make a case to your insurance to return to Xarelto?