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Immune Thrombocytopenia Purpura (ITP): What helps?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (174)Comment receiving replies
Hi @hoytm40,
Fellow ITP members like @rojo36 @hi2l @mjpm2406 @melody12 may also join in to share their experiences.
Immune thrombocytopenia (ITP) used to be called "Formerly known as idiopathic thrombocytopenic purpura". Immune thrombocytopenia is a disorder that can lead to easy or excessive bruising and bleeding. The bleeding results from unusually low levels of platelets — the cells that help blood clot.This disease is caused by an immune reaction against one's own platelets.
Naviv, you asked about foods and supplements that might help increase your platelets. Here's an article that might interest you.
- How to Naturally Increase Your Platelet Count https://www.healthline.com/health/how-to-increase-platelet-count
Eating certain foods and taking supplements may help to increase your platelet count. Your care team can help make the right recommendations for you. Be sure to tell your doctor about any ongoing thrombocytopenia symptoms. If you have a very low platelet count, you may need medical treatment to avoid serious complications.
@hoytm40 and @naiviv do either of you have pre-existing autoimmune conditions?
Replies to "Hi @hoytm40, Fellow ITP members like @rojo36 @hi2l @mjpm2406 @melody12 may also join in to share..."
I am 79 and have been living with ITP for over 15 years. Because of international travel splenectomy not recommended. No steroids because of diabetes. Promacta worked great for many years until it didn’t. Retuxin didn’t work at all and was very debilitating. IVIG with weekly Nplate shots worked great but when we travel around the US for weeks at a time we have had to make Dr appointments everywhere every weeks so now we are trying Doptelet with mixed results so far. It is VERY expensive and not covered by Medicare as Nplate was.
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I was diagnosed at age 9 with ITP. I took steroids till I was 16. At the age of 32 I had my spleen removed which solved my problem. My spleen would filter all my paletts which caused the drop. This may not be for everyone, but it was my experience with it.