I feel for you! Like you I was in pain, sleeping a lot, gaining some weight, I was shedding some hair and was sick a lot. A specialist diagnosed me with Fibromyalgia and chronic fatigue syndrome. I finally got in to see an Endocrinologist years ago. Tests showed my TSH was very low and I have Hashimoto's autoimmune disease. I started taking Synthroid and having my TSH checked every six weeks slowly increasing the dose until it was right. My endocrinologist said my thyroid disease had likely gone on since adolescence so the doctor recommended testing my 12yr. old daughter. She was diagnosed with the same as I was. My doctor had said that the lab test range is incorrect. She had 30 years of experience. For example...the normal range goes to about 5.0 according to the labs. This is to low she said and can cause many symptoms. The TSH level shouldn't be lower than about 2.5. I feel best when my TSH is about 2.0. If it's high I feel shaky, have trouble sleeping and a lot of anxiety! Now this year I was diagnosed with an extremely rare autoimmune disease, Esophageal Lichen Planus. My immune system is attacking all of the mucus membranes in my body. It's in my esophagus, mouth and skin. No cure for this disease! There's approximately 25-30 cases in the country. Hashimoto's may be a contributing factor! I was also diagnosed with Colitis this year which is also an autoimmune disease. I sure hope you can find a good Endocrinologist! I feel for you!

Hey, I am going through something very similar. Does your insurance allow you to self-refer to specialists? Also, tell your docs exactly which tests you want done and why. Some labs even let you order certain labs yourself. See a Registered Dietician. Eastern Medicine doc. Ideas- yes the MTHFR gene test, nutrition labs (I did ALCAT and Genova), Vitamin B and D levels especially (especially B12!), malabsorption labs, food and chemical sensitivity testing, Celiac, H pylori, endoscopy, colonoscopy, maybe an MRI of brain/spine, LP, EEG, sleep study… whatever else is on your mind. Follow your gut. And be open. But also don’t hesitate to get 20 second-opinions! And consider it all! And have a little patience before you decide on the treatment path you want to take. I know, patience 🤣🤣🤣, I’d let you slap me if you were here! But I’ve learned the wrong treatment is worse than no treatment sometimes. Go out of state. I know that’s easier said than done. My point is, someone will click with you and you will get progress!!! Power on! And when you can’t get out of bed, do you have someone who could schedule appts for you and put you in the car and take you? Maybe find a cheap or loaner walker or wheelchair and ask anyone to drag you to the doctor or to your counselor or whatever you need! This is where I’m at now, as much as I didn’t want to be-and it’s worth it. My family and friends need me to get better and so I try! And I want to leave a good legacy behind. You write your story, not doctors or bosses or anyone else. 🤗💗 Also look and see what research studies are going on, you just might qualify to join one! Seriously! Doing so greatly helped me and found me a doctor that was interested in me specifically! It’s an easy Google search. Go through legit places of course. I am working with the University of Colorado. 😉 There’s tons of studies out there! They usually help with travel plans and costs even! And you can help others at the same time!

Just chimin’ in- My docs and I have even gone back and looked at old tests for the third, fourth time, and found something new! Also, different docs are used to certain imaging, so repeat tests through different facilities may help docs understand better!

Just diagnosed with Rhumatiod Arthritis Interstitial
Lung Disease. What has helped? Any information that helps me cope?