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Belatacept

Transplants | Last Active: Sep 3, 2022 | Replies (32)
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@peggykatz

I have had a positive experience with it, started after rejection issues with prograf ,and Rappamune. I was just curious if it’s being used as protocol after new transplants?
My 40 yr old daughter also has PKD and started testing process got transplant, Her GFR is 23 so it may be a yr before potential donors can be tested.
Thank you
Peggy

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Replies to "I have had a positive experience with it, started after rejection issues with prograf ,and Rappamune...."
Rosemary, Volunteer Mentor | @rosemarya | Sep 2, 2022

Peggy, I don't have any experience with Belatacept. I did some searching, and I found that it is being researched at Mayo Clinic as a steroid-free option for kidney transplant recipients.
Here is a statement from The Kidney Transplant Dept - Care at Mayo Clinic Section under the Research Topic. - "... Other research areas include looking at new ways to use immunosuppressive medications, including tacrolimus (Prograf, Protopic, others), sirolimus (Rapamune), belatacept (Nulojix) and steroid-free immunosuppression medication options, to help reduce side effects and complications for people with kidney transplants..."
https://www.mayoclinic.org/tests-procedures/kidney-transplant/care-at-mayo-clinic/pcc-20384782

I want to tag @ladydidehart, @banksnc49, @nanmargaret to join this conversation because they have some experience with belatacept.

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