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Hairy Cell Leukemia

Blood Cancers & Disorders | Last Active: Apr 10, 2023 | Replies (39)

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@phyreguy79

Hello, I was diagnosed with HCL in 2015. I just went through my 2nd round of chemo last November of 2021.
Beside cladribine I was also given rituxmab. I'm not sure which one or if it was a mixture of the two, I suffered bad convulsions and they had to stop the treatment. I finished the week with the clad but went through a fever all week. When I got home on the Friday my fever got worse so I went to the emergency unit. They decided to keep me and during my stay I couldn't lift both arms. The left arm came back to use after two days. but my right is still a problem. I have about 2 inches of dead nerve in my right shoulder. IF, it comes back it could take up to 2 years. Has anyone had anything similar?

Thank you

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Replies to "Hello, I was diagnosed with HCL in 2015. I just went through my 2nd round of..."

@phyreguy79, you must be worried about regaining the use of your right shoulder. Are you doing physical therapy? Or is that not recommended?

The Ritux has severe side effects. Muscle spasms are one of them. The reactions or side effects for Ritux are
1. Ineffective
2. Death
And on from there...