← Return to Richter's Syndrome: Is anyone else dealing with this disease?

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@taichung0812

I was diagnosed with CLL/SLL in 2014. No treatment till June of 2021. Very good response but diagnosed with Richter's in my tonsil in Oct/Nov of 2021. Started a regimen my oncologist suggested (not R-CHOP) earlier Nov and both CLL and Richter's went into remission in Jan of 2022. I had no side effects during and after the treatment except low WBC and ANC. I have been feeling great and it is a miracle. Since Richter's has high chance of relapse I have been closely monitored by oncologist and lab results (lab very two weeks first and now every four weeks). I'm still taking Revlimid (part of the regimen). Bone marrow transplant is probably not possible for me due to my age (just turned 77) so CAR-T is an option if relapse. I would like to share my experience with others with Richter's and support each other but hard to find other patients since it is a very rare and aggressive type of cancer.

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Replies to "I was diagnosed with CLL/SLL in 2014. No treatment till June of 2021. Very good response..."

@taichung0812, such a helpful and hopeful post. I wish a long and eduring remission. Should you ever have to consider CAR-T Therapy, please note that we have a support group dedicated to this treatment protocol. It's a treatment you or your caregiver may wish to lean on peer support. See here:
- CAR-T Cell Therapy support group for patients and caregivers https://connect.mayoclinic.org/group/car-t-cell-therapy/