1. < Prostate Cancer

Prostate Cancer- getting help-questions answered

Posted by cony2 @cony2, Aug 16, 2022

Approximately 20 years ago a Urologist after listening to my symptoms and without doing procto or anything said I had prostate cancer and would schedule me for surgery next week-- my response was lets talk and chose to go on the blue pill and wait.
Since then after biannual tests and blood count going from 4 to 7 now 14, suggests getting a bone marrow test to see if any cancer cells show up.
My question is: should I consult a cancer specialist now???

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melcanada | @melcanada | Sep 1, 2022

YES don't wait Lots of therapies Zolodex, I did 40 sets of radiation but 5 yrs later metastasized to L2 Lumbar which I had radiated 1 yr ago PSA 1.2 on Zolodex

Now looking at Darolutimide

Just saw this " Relugolix Approval Expected to Alter Treatment for Advanced Prostate Cancer Best to reduce testosterone which as you know is the fertilizer for prostate cancer

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melcanada | @melcanada | Sep 1, 2022
In reply to @edo "I (age 69) had my radical prostatectomy in March 2022 and the incontinence is still with..." + (show)
@edo

I (age 69) had my radical prostatectomy in March 2022 and the incontinence is still with me 6+ months later but is much, much improved. I stopped using pads after 3-4 months and now only have occasional drips and dribbles, usually in the evening. No longer any problems during the night. I would recommend pelvic-floor therapy as it helped me. As for sex drive and ED, my urologist started me on a daily low dose of Viagra (with stimulation) after my catheter was removed. Not much happened for the first 3 months or so but I was able to have an erection-less orgasm occasionally. Progress improved slowly but surely after 3 months and I am happy to report that intercourse was achieved recently (6 months post-surgery) so maybe you will have similar good fortune.

Jump to this post

Forget about sex Its the testosterone feeding P cancer

Get to oncology Maybe get on Zolodex

Just saw this " Relugolix Approval Expected to Alter Treatment for Advanced Prostate Cancer Best to reduce testosterone which as you know is the fertilizer for prostate cancer

REPLY
1 reply
melcanada | @melcanada | Sep 1, 2022
In reply to @cilong "My husband’s oncologist prescribed Abirateron (Zytiga) treatment assuring us there was no risk of seizure side..." + (show)
@cilong

My husband’s oncologist prescribed Abirateron (Zytiga) treatment assuring us there was no risk of seizure side effects. Three to four weeks into treatment, husband had a gran mail seizure and was transported to ER. Thankful he was home and not driving, etc. Three of his doctors (oncologist, pcp, and now neurologist) still say this is not a side effect. They don’t like it when we do our own research, My husband has been seizure free for over forty years. He will be having an MRI and EEG just to be sure something else isn’t going on, but it seems the Abiraterone was the culprit. Any thoughts? Thank you.

Jump to this post

Get on Zolodex
Best to reduce testosterone which as you know is the fertilizer for prostate cancer

Get to medical oncology fast
Lots of choices Enzalutimide Doralutimide etc as needed

REPLY
1 reply
melcanada | @melcanada | Sep 1, 2022
In reply to @melcanada "Get on Zolodex Best to reduce testosterone which as you know is the fertilizer for prostate..." + (show)
@melcanada

Get on Zolodex
Best to reduce testosterone which as you know is the fertilizer for prostate cancer

Get to medical oncology fast
Lots of choices Enzalutimide Doralutimide etc as needed

Jump to this post

Or Just saw this " Relugolix Approval Expected to Alter Treatment for Advanced Prostate Cancer

REPLY
melcanada | @melcanada | Sep 1, 2022
In reply to @cilong "My husband’s oncologist prescribed Abirateron (Zytiga) treatment assuring us there was no risk of seizure side..." + (show)
@cilong

My husband’s oncologist prescribed Abirateron (Zytiga) treatment assuring us there was no risk of seizure side effects. Three to four weeks into treatment, husband had a gran mail seizure and was transported to ER. Thankful he was home and not driving, etc. Three of his doctors (oncologist, pcp, and now neurologist) still say this is not a side effect. They don’t like it when we do our own research, My husband has been seizure free for over forty years. He will be having an MRI and EEG just to be sure something else isn’t going on, but it seems the Abiraterone was the culprit. Any thoughts? Thank you.

Jump to this post

" Relugolix Approval Expected to Alter Treatment for Advanced Prostate Cancer

REPLY
ctpaul | @ctpaul | Sep 1, 2022
In reply to @web265 "I'll just drop a couple comments here with the caveat that I'm not a dr or..." + (show)
@web265

I'll just drop a couple comments here with the caveat that I'm not a dr or an expert, just having gone through the operation myself.

My understanding of the T relationship, put in simple terms is, Testosterone is essentially prostate cancer "food", this is why when you're on radiation they give you therapy to reduce the production of testosterone. I've often hear of folks getting testosterone injections but I just don't understand the science/idea behind it other than trying to boost quality of life for the patient.

At your stage of the game, again as a layman again, the continual bleeding would concern me a great deal. It shouldn't be from the urethra repair at 10 weeks if that's not healed it should be checked. However, if it's not that, they'd have to start looking at bladder issues or perhaps kidney stones. Having said that, by intentionally dehydrating to avoid the incontinence issues you could be creating an environment where stones might flourish.

You said you haven't had a follow up yet, but, have you told the doc what is happening? With this symptom in mind, I'd be knocking hard on the urologists door at this point for some answers/diagnoses. Maybe even a second opinion. Other things like sex drive and erectile issues would be secondary for me at this point, and, I would think it's fairly early in that part of the journey for you.
Good Luck to you!

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Thanks for the tip. I have scheduled an appointment with my primary care doctor, whom I seem to see only twice a year. Unfortunately my PC Doctor is female. I'm not putting her down in any way, but I wonder if she would be able to see the situation the way I see it.
Guess I'll find out in 2 weeks!

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1 reply
tnola123 | @tnola123th | Sep 2, 2022
In reply to @melcanada "Forget about sex Its the testosterone feeding P cancer Get to oncology Maybe get on Zolodex..." + (show)
@melcanada

Forget about sex Its the testosterone feeding P cancer

Get to oncology Maybe get on Zolodex

Just saw this " Relugolix Approval Expected to Alter Treatment for Advanced Prostate Cancer Best to reduce testosterone which as you know is the fertilizer for prostate cancer

Jump to this post

BUT RELUGOLIX /ORGOVYX ALMOST KILLED ME LIKE IT DID TO 9 MEN OUT OF 332 IN FDA APPROVED STUDY

REPLY
2 replies
tnola123 | @tnola123th | Sep 2, 2022

I WENT TO CANCER SPECIALIST AND HE CRIED AFTER HEARING WHAT MY LARGE UNIVERSITY BASED DOCTORS HAD DONE/NOT DONE----MAY 12 FUSION BIOPSY ALL 9 GLEASON SCORES...ON LEFT SIDE NOW SEPTEMBER AND- STILL WAITING.....FOR SOMETHING TO HAPPEN....BULGE ON LEFT SIDE, TOO BIG FOR SURGERY "TOO LATE FOR SURGERY" "FOR YOU TOO MANY EXPECTED NEGATIVE SIDE EFFFECTS FROM BRACHYTHERAPY" SO ...WIDE BEAM ONLY EVEN THOUGH THEY NOW HAVE PROTON BEAM (NO PROTON BEAM FOR YOU HERE BECAUSE INS SAYS IT COSTS TOO MUCH AND THE LONG TERM DATA IS THE SAME FOR MEN WITH WIDE BEAM AND PRONTON" "NO MORE PSA TESTS FOR YOU" AND NO SPACE OAR GEL PAD....NOT FOR MEN ON BLOOD THINNERS" I AM ON CARVEDILOL -----I FEEL LIKE I AM GOING TO BE WIDE BEAM RADIATED AND MY COLON WILL GO CNCEROUS IN 5-7 YEARS OR MY BLADDER----THEY WILL DO 44 DAYS---IT IS A OLD VARIAN HALCYON MACHINE NOT LIKE NEW Varian TrueBeam Linear Accelerator, 67 MILES AWAY....AND I CAN WALK 3 MINUTES TO THE OLD ONE----I FEEL LIKE I AM BEING BLOCKED FROM NEW AND SAFER TECHNOLOGY AND JUST EING INSERTED INTO A LINE OF MEAT SAUSAGES FOR RADIATION AND THAT NO MEN EVER GET ALL THE CANCER KILLED OFF AND I WILL DIE SOONER BECAUSE OF IT....GOOD LUCK TO YOU

REPLY
3 replies
melcanada | @melcanada | Sep 2, 2022
In reply to @tnola123th "I WENT TO CANCER SPECIALIST AND HE CRIED AFTER HEARING WHAT MY LARGE UNIVERSITY BASED DOCTORS..." + (show)
@tnola123th

I WENT TO CANCER SPECIALIST AND HE CRIED AFTER HEARING WHAT MY LARGE UNIVERSITY BASED DOCTORS HAD DONE/NOT DONE----MAY 12 FUSION BIOPSY ALL 9 GLEASON SCORES...ON LEFT SIDE NOW SEPTEMBER AND- STILL WAITING.....FOR SOMETHING TO HAPPEN....BULGE ON LEFT SIDE, TOO BIG FOR SURGERY "TOO LATE FOR SURGERY" "FOR YOU TOO MANY EXPECTED NEGATIVE SIDE EFFFECTS FROM BRACHYTHERAPY" SO ...WIDE BEAM ONLY EVEN THOUGH THEY NOW HAVE PROTON BEAM (NO PROTON BEAM FOR YOU HERE BECAUSE INS SAYS IT COSTS TOO MUCH AND THE LONG TERM DATA IS THE SAME FOR MEN WITH WIDE BEAM AND PRONTON" "NO MORE PSA TESTS FOR YOU" AND NO SPACE OAR GEL PAD....NOT FOR MEN ON BLOOD THINNERS" I AM ON CARVEDILOL -----I FEEL LIKE I AM GOING TO BE WIDE BEAM RADIATED AND MY COLON WILL GO CNCEROUS IN 5-7 YEARS OR MY BLADDER----THEY WILL DO 44 DAYS---IT IS A OLD VARIAN HALCYON MACHINE NOT LIKE NEW Varian TrueBeam Linear Accelerator, 67 MILES AWAY....AND I CAN WALK 3 MINUTES TO THE OLD ONE----I FEEL LIKE I AM BEING BLOCKED FROM NEW AND SAFER TECHNOLOGY AND JUST EING INSERTED INTO A LINE OF MEAT SAUSAGES FOR RADIATION AND THAT NO MEN EVER GET ALL THE CANCER KILLED OFF AND I WILL DIE SOONER BECAUSE OF IT....GOOD LUCK TO YOU

Jump to this post

Get 40 days of radiation with last 5 being rapid arch for margins Then get on Zolodex No concerns It stops testosterones the fertilizer for prostate cancer forget sex

REPLY
melcanada | @melcanada | Sep 2, 2022
In reply to @tnola123th "BUT RELUGOLIX /ORGOVYX ALMOST KILLED ME LIKE IT DID TO 9 MEN OUT OF 332 IN..." + (show)
@tnola123th

BUT RELUGOLIX /ORGOVYX ALMOST KILLED ME LIKE IT DID TO 9 MEN OUT OF 332 IN FDA APPROVED STUDY

Jump to this post

Get 40 days of radiation with last 5 being rapid arch for margins

Then get on Zolodex No concerns It stops testosterones the fertilizer for prostate cancer forget sex

REPLY
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