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Chronic Headaches and Dizziness

Brain & Nervous System | Last Active: 1 day ago | Replies (21)

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@agis14

Dizziness is almost always present, so it’s similar to PPPD. The pressure makes it feel like I’m off balance rather than room spinning, but a year ago I did have sensations to a spinning room. I haven’t been referred to an ENT doctor since they think it’s neurological.

Aside from that, nerves in my wrists, forearm, and upper arm have begun to sting a bit more recently. Over these 2 years it’s mostly been guesses and pain management for general vertigo and headaches. What I have sounds progressive and I still have no idea what it is unfortunately 🙁

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Replies to "Dizziness is almost always present, so it’s similar to PPPD. The pressure makes it feel like..."

My dizziness was not like vertigo. I had a pressure and full feeling in my head and my eyes felt like I was dragging along in almost a swaying environment. Riding in the car to various doctors was very hard. I think one of the hardest parts of this was trying to get a diagnosis. I had the primary doctor, the neurologist, the eye and hearing exams, the brain MRI, all while the docs were coming up with nothing. Finally the ENT showed me a video and asked “Is this what you are seeing?” Bingo! She diagnosed PPPD and suggested SSRI type antidepressant which for some reason helps with this and Vestibular Rehabilitation. I’m not taking an SSRI but my mental health therapist said the one I’m taking is very similar so we didn’t change that. Most docs I saw are completely unfamiliar with PPPD as it’s a relatively new term. The rehab therapist made sure to rule out regular vertigo which probably comes and goes in spells. Mine was all day every day. I was able to read and watch tv so when I wasn’t in motion I was comfortable. It’s pretty scary stuff researching on the internet so I would just ask an ear, nose and throat doctor. Sounds like you have a lot going on. My neurologist thought I was having silent migraines and had never heard of PPPD. I’ve never had a migraine in my life so I did not go along with her assessment. Since I just got better over time with a few sessions of vestibular therapy and doing the exercises at home, I think I had a true case of PPPD. Hang in there and I hope you can get things sorted out.