...oh just noticed you were advised not to tell your story; well I see more and more people telling their stories I found a blog on a woman who still suffering years after C.Diff; a woman who believes her tinnitus etc. caused by no hearing protection during mri's ; how can anyone - anyone - not be allowed to tell their story. If someone. public, doctor, reading the story has issue with it... then speak up. I had an old medical book which showed my symptoms of cancer of cervix; gp said to me; it's hygiene, hygiene hygiene - 3 times as if I didnt comprehend; months went by new dr close to where i worked, older lady... checked the area and said 'I don't see anything'..... had been referred to gyno but had to wait - when i had bowel movement, bleeding from vagina... still at work, knew something wrong. Exam on gynos table he said need d and c as soon as possible but his receptionist made appointment for 2 months. i wrote a note which dr probably didnt see. Then so much pain put in hspital, he did dandc and i had tumour size of apple - whizzed off to hospital out of town and, guess what, that's another story! Did I do anyting about these mis diagnoses/nope but I wish I had. After that, numerous times given wrong pills; not taken serously; taken off meds been on 15 yrs after last 5 pills; put back on pills I had been advised not to take and it goes on and on. Why cant i write my story especially if I change all names, locations/ Why cant anyone write their story? Yes two sides to every story ... theirs and the truth.I have backup written test results etc but yes its my word again theirs and yes there have been some amazing drs. who helped me and I would mention that too ...if it were not for those helping drs. I don't think I would have made it.
Last year after attacks at home , ambulance, interview, given Tylenol, emerge dr said; Well it wasn't a stroke. 4 months later talking to neurologist about something else described the attacks and he ordered mri and I DID have small stroke. I did nothing about it except put a polite negative comment on RateMDS.... I got a copy of the incident from hospital - you just have to ask and they have to give copy under Freedom of Information Act and free. However as my old Nan used to say ... what's done cannot be undone...thing is it keeps happening to me; do I have 'BEWARe OVERLY SENSITIVE PATIENT...checks google, belongs to MAYO CONNCT' stamped on my forehead? ugh I have tried writing my stories the good and the bad but who, really wants to read ?? Thankfull we can not only vent here but hear others how they coped or are not coping, try and provide some support and great moderatos who give us advise.... j.