1. < Neuropathy
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Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

Interested in more discussions like this? Go to the Neuropathy Support Group.

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dgneal13 | @dgneal13 | Aug 29, 2022

I got neuropathy from a combination of the vaccine and covid . I am still battling with neuropathy in my feet and hands. I am not a diabetic and was healthy before all of this started

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m2m | @m2m | Aug 29, 2022
In reply to @carolann1952 "My neuropathy started after spine surgery #6 for scoliosis. Has gradually increased since 2006. Result BK..." + (show)
Profile picture for carolann1952 @carolann1952

My neuropathy started after spine surgery #6 for scoliosis. Has gradually increased since 2006. Result BK Amp 5yrs ago. I currently have constant burn below right knee. Has increased more since COVID vaccines and booster ×1. I take Gabapentin and medical Marijuana. It takes several hours to get the pain to the point where I can sleep! HELP!!

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Ask your Dr. If it could be Arachnoiditis? Mine is now , after mis-diagnosed for 23 years as Idiopathic P.N.

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John, Volunteer Mentor | @johnbishop | Aug 29, 2022
In reply to @dgneal13 "I got neuropathy from a combination of the vaccine and covid . I am still battling..." + (show)
Profile picture for dgneal13 @dgneal13

I got neuropathy from a combination of the vaccine and covid . I am still battling with neuropathy in my feet and hands. I am not a diabetic and was healthy before all of this started

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I think it's great that you haven't given up @dgneal13. Hopefully you will find something soon that provides some relief for you. The Foundation for Peripheral Neuropathy has a lot of helpful information including complementary and alternative treatments - https://www.foundationforpn.org/treatments/.

Are you currently on any medications for neuropathy, or have you looked into any alternatives?

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dgneal13 | @dgneal13 | Aug 29, 2022

They just started me on Gabapentin 100 mg. I have been tested for small and large fiber neuropathy with negative results. Thanks for the info

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carolann1952 | @carolann1952 | Aug 29, 2022
In reply to @johnbishop "Welcome @carolann1952, I'm sorry to hear your spine surgery caused your neuropathy. There are a lot..." + (show)
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Welcome @carolann1952, I'm sorry to hear your spine surgery caused your neuropathy. There are a lot of alternative and complementary treatments that may be helpful. The Foundation for Peripheral Neuropathy has a list of what others have found helpful here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

Have you tried any complementary or alternative treatments?

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I had laser RX first 8 yrs ago and it decreased symptoms to right lower leg, tried chiropractor, also acupuncture. I trialed the NEUROS nerve stimulator. Little relief. Seems worse since COVID vaccine.

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carolann1952 | @carolann1952 | Aug 29, 2022
In reply to @m2m "Ask your Dr. If it could be Arachnoiditis? Mine is now , after mis-diagnosed for 23..." + (show)
Profile picture for m2m @m2m

Ask your Dr. If it could be Arachnoiditis? Mine is now , after mis-diagnosed for 23 years as Idiopathic P.N.

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How are you being treated?

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Chris, Alumni Mentor | @artscaping | Aug 29, 2022
In reply to @martyk "Hi Chris, I have a bulb neuroma and scar tissue from two prior surgeries on the..." + (show)
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Hi Chris, I have a bulb neuroma and scar tissue from two prior surgeries on the toes of my right foot. I have been told by a podiatrist that he can't do anything else for me and suggested I see a pain management doctor. Do you or any of your followers have any suggestions on how to treat this problem of pain in my toes? Thanks

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Oh my goodness......how did I miss your response? So Sorry. Your best bet this morning is to hear from @rwinney. Rachel is not a pain management doctor. However, she has lots of pain management experience as a patient and as a mentor.

May you have comfort and ease today.

Chris

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m2m | @m2m | Aug 29, 2022
In reply to @carolann1952 "How are you being treated?" + (show)
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How are you being treated?

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Neurologist surgeon found oil used as contrast for the myleogram done in 1979. It was banned world wide the following yr. Several articles I have read support that was the biggest cause of Arachnoiditis until then.
I am looking for a Dr in Florida like Dr Tennant.
Any Ideas or leads would be appreciated.
Mark M.

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John, Volunteer Mentor | @johnbishop | Aug 30, 2022
In reply to @m2m "Neurologist surgeon found oil used as contrast for the myleogram done in 1979. It was banned..." + (show)
Profile picture for m2m @m2m

Neurologist surgeon found oil used as contrast for the myleogram done in 1979. It was banned world wide the following yr. Several articles I have read support that was the biggest cause of Arachnoiditis until then.
I am looking for a Dr in Florida like Dr Tennant.
Any Ideas or leads would be appreciated.
Mark M.

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Hi Mark @m2m, There are a couple of other discussions you might find helpful since you mentioned being diagnosed with Arachnoiditis.

-- Arachnoiditis: Trying to find a specialist: https://connect.mayoclinic.org/discussion/i-am-looking-for-a-doctor-in-nc-that-treats-patients-arachnoiditis/
-- Arachnoiditis: Looking to talk with others: https://connect.mayoclinic.org/discussion/arachnoiditis/

Have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic?

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baleyismine2 | @baleyismine2 | Aug 31, 2022

I have non diabetic peripheral neuropathy.

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