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MCTD, Fibromyalgia, Reynauds

Autoimmune Diseases | Last Active: Sep 15, 2023 | Replies (78)

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@amandaa

Hi @tb0010 and welcome to Mayo Clinic Connect. I wanted to introduce you to @boconn89. I moved your post to their discussion so you can collaborate with other members that are having similar symptoms.

You can get to the discussion through this link:
MCTD, Fibromyalgia, Reynauds
https://connect.mayoclinic.org/discussion/mcdt-fibromyalgia-reynauds/

And here is some good info to read: "Many patients with autoimmune disease will not have a positive ANA. While the ANA test is highly sensitive for certain rheumatic diseases such as SLE and ..." --- Antinuclear antibody test: https://www.racgp.org.au/afp/2013/october/antinuclear-antibody-test
Rheumatologist Explains: Mixed Connected Tissue Disorder:
https://youtu.be/zygd3Vx88aU

10 years is an awful long time to suffer through this without a definitive diagnosis. What types of tests have you undergone to find an answer?

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Replies to "Hi @tb0010 and welcome to Mayo Clinic Connect. I wanted to introduce you to @boconn89. I..."

Thank you so much! I’ve been the 2 rheumatologists. One in Huntsville, AL and one at Vanderbilt in Nashville, TN. Both said just because I had RNP levels of 8 doesn’t mean I’m sick. I’m tired all the time, I think I have essential tremor in my face, my joints hurt. They said I don’t have the visible symptoms of MCTD. My dentist said I have TMJ and that might be causing the tremor in my face. I gave up for years after two professions told me I’m fine. I have anxiety and panic attacks that nothing helps. I’ve been on propranolol for the panic attacks. I just feel weak and tired all the time and I shouldn’t feel this way in my 20s. I feel disconnected from my body and my movements. Like jerky movements and tic like movements sometimes. Anxiety definitely makes it worse but I don’t think that’s the cause. The rheumatologist told me have fibromyalgia and to exercise and eat well. I eat well and exercise daily. Nothing helps. I have perfect labs and im a healthy weight. The only thing that ever shows up is the RNP of 8