Post-Nissen Fundoplication Problems: What helps?

Posted by nirolk @nirolk, Apr 29, 2018

<p>I had a nissen wrap operation in 1999. I still have problems at night after about 4 hours of sleep. I've tried all kinds of drugs to help relieve the gas. Right now I am on 40 mg of pantoprazole in the morning before breakfast. Most of the time days are fine. I have problems being regular on bowl movements, so I have a high amt of gas from the meds I take to go number 2. At night is when I have real problems. Any kindred spirits out there?</p>

Interested in more discussions like this? Go to the Digestive Health Support Group.

Well wishes where are you located. Hope not Utah. Go slow liquids soft food. Baby steps. Don’t lift I wish I would of know that. Speedy get well.

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@marychapman

@btowngal - I will start off by saying that I am a Canadian so my experiences may be different than most Americans experience. I had my first open Nissan in 1988 and at that point it was a new surgery and I was advised then that they couldn’t give us any idea of how long the Nissan may last or what the long term side effects could be. It was a terrible experience when it was done and I swore that I would never have a repeat. I had my repeat Nissan 15 years which was about what they had expected. I had that done laparoscopically which was far easier to recover from it was still a poor experience. Both times I needed to have my throat stretched 2-3 months after the surgeries as the wraps were too tight and I couldn’t swallow more than jello. I have had my wrap rechecked several years ago and they say it is still intact but my swallowing is becoming more and more comprised and I can’t get above 105 lbs. I had been so ill with other gastro issues as a result of the Nissan’s that I was down to 90 lbs and my gastro dr wasn’t too concerned. I have severe back pain, sciatica, spinal stenosis, gastropareisis and gas bloat syndrome. About every 6 weeks I experience terrible pain and bloat as a result of the gastro stuff that I have to take enough pain meds to knock myself out for hours as the pain is almost unbearable; as well as severe dry heaving that goes along with it. Since I can’t throw up at all the nausea goes on and so does the dry heaving. About 3-4 days later I eventually pass everything through painful diarrhea. I just had a colonoscopy and won’t get results until early December. My Dr has dragged this testing out over a year and only because he finally saw me and realized how bad I had become. There seems to be several new procedures for acid reflux which seem to be much less invasive than when I had my first surgery. I wish that I had never started down this path. I don’t think that I would ever have another Nissan done as my body couldn’t it. Best of luck to anyone dealing with these issues.

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So sorry this has been so terrible for you.

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@nms22

I had Nissen Fundoplication in March 2018. I am very pleased with the procedure, compared to the symptoms I was having prior. I do sometimes have digestive problems but are only about once every 6 weeks or so and nothing as drastic as the comments above. One thing I have learned is that eating too much sugar or carbs in one meal can trigger a very unpleasant reaction. Another thing I have noticed is that I do have more gas than I remember having prior to the procedure.

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I had mine nearly 7 years ago and it has been a very good thing. My body produces excess stomach acid whether I eat or not, and it was destroying my esophagus. I definitely have to be more mindful of what I eat, and when (all explained to me prior to surgery). I sleep well, no longer need propping up, or antacids, and my esophagus is much better for it. For your nightime bloating you may want to sip on Inflammation Relief made by Loose Leaf Tea in Scottsdale, Az (they ship). I keep it on hand when I eat something that I shouldn't have and it works in minutes. I was blessed with an excellent surgeon who took time to review pros and cons and provided a detailed dietary recommendation. Hope this helps.

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Hi I know this is late and you probably won’t see this but I have searched the web for days trying to find someone else with this problem. It is exactly as you describe for me to..exact same issue. The crazy part about it it is so hard to describe. I can’t wrap my mind around why it happens. And it is exactly 4 hours after laying down. I came to the conclusion jt was gas aswell. Just tried gas-x and it helped the first night but the next night it did not. Did you ever find a solution? Did you find out why it happens? ANY feedback will help please let me know. So far I have decided not eating 5 hours before bed seems to be possible solution. This is dire for me I will even leave my number to text because it effects my sleep which is driving me insane lol 4174592882

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I had the Nissen fundoplication nine days ago. So far, it’s a failure. Here are the symptoms I’ve recorded:

Day 1 (surgery)
-substantial sour acid in mouth started when I woke up post-surgery
-burping/gurgling in upper esophagus up to throat started
-white tongue started
Day 2
-bloated/not hungry started
Day 3
-hoarseness started
-dry mouth started
-throat clearing started
Day 4
-gas/bubbling in stomach started
-minor chest discomfort
Day 6
- almost completely hoarse/mute
-sore throat started
Day 7
-infrequent hiccups started

On day 7, I met the surgeon and discussed (though I could barely talk) my symptoms. recommended I take peppermint and Famotodine at night. The peppermint was supposed to help if I was suffering from esophageal spasms. If that didn’t work, the surgeon said he would put me on a calcium channel blockers.

Today is day 9. I’m still suffering from substantial reflux. I took one drop of peppermint oil and an hour later the reflux seemed to worsen. I took Famotodine to no avail. I took a bunch of tums, nothing. At this point I’m about to take PPIs because the reflux is unbearable.

Of note, pre-op, I didn’t have an esophageal manometry study. The surgeon said he usually doesn’t recommend them for patients because they are extremely uncomfortable for the patient. I had the barium swallow, endoscopy, and 48 hour pH monitor. The ph monitor verified the GERD, and the endoscopy showed minor gastritis. I was also diagnosed with GERD off a 24 hour monitor 15 years ago (been on PPIs off and on since then).

Is it possible the surgical procedure was performed incorrectly? Is it too loose? I’ve had no issue with swallowing or eating. I’ve been playing it safe with my diet, and am currently at the soft diet stage (oatmeal, chunky mashed potatoes, sashimi, etc) with no issues. I do get full very easily, and my gag reflux isn’t present. I’ve lost nine pounds, and I’m a thin frame to begin with. My abdomen isn’t sore, except at the incision sites (minor). I see the surgeon again in two weeks. Frankly, I’m very upset, because the symptoms I’m having are actually worse than they were before I had the surgery. Any advice or insights would be appreciated!

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@chris55x Hi and welcome to Mayo Clinic Connect. I am sorry to hear that you are having issues right after your surgery. I want to introduce you to @jeremywilsonsmp, @drinell59, @justann, @thielman100 and @ken82
I moved your post here so you can connect with these other other members.
Post-Nissen Fundoplication Problems
https://connect.mayoclinic.org/discussion/post-nissen-wrap-symptoms/?pg=7#comment-742506
Did your surgeon say that you could take PPIs after the surgery?

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@jeremywilsonsmp
I had similar experience in 2015 here in Central Iowa at my local clinic _hospital.. I was hospitalized 9 days.. lost weight (nearly 50 pounds) in 2 months when my appointment with Mayo MN came through.. the GI section there found the problem in a day.. 3 tests.. first was the timed standard breakfast .. my GI doc there said that 1 in 6 Nissen surgeries FAIL.. Mayo gave me a way to cope.. I struggle to keep weight.. I've gained 20-25 pounds back.. eating small..very slow..sweet..fat.. .. the way you eat now is the key.. I have to never lay down flat..sleep on a wedge.. stay vertical sitting or standing for 2 hours after eating.. but I try to eat something every time through the kitchen.. nuts, crisp things.. no soft bread.. no just leafy vegs..except the stalks of romaine.. veg and fruit smoothies are the best..

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@jeremywilsonsmp
The result of the failed Nissen was "post-operatve gastropanesis.." some nerves around the stomach were damaged.. they do not regenerate.. so I have to rely some on gravity to empty the stomach.. so sauces.. small pieces .. liquidfy..all help stomach process easier..

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@amandaa

@chris55x Hi and welcome to Mayo Clinic Connect. I am sorry to hear that you are having issues right after your surgery. I want to introduce you to @jeremywilsonsmp, @drinell59, @justann, @thielman100 and @ken82
I moved your post here so you can connect with these other other members.
Post-Nissen Fundoplication Problems
https://connect.mayoclinic.org/discussion/post-nissen-wrap-symptoms/?pg=7#comment-742506
Did your surgeon say that you could take PPIs after the surgery?

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No- he did not want to start PPIs because he wanted to rule out esophageal spasms. But the acid is too much- I’m going to need to restart them

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@ken82

@jeremywilsonsmp
The result of the failed Nissen was "post-operatve gastropanesis.." some nerves around the stomach were damaged.. they do not regenerate.. so I have to rely some on gravity to empty the stomach.. so sauces.. small pieces .. liquidfy..all help stomach process easier..

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That’s horrible, I’m sorry to hear. I read post-operative gastroparesis usually resolves on its own, or can be helped with medication? I sure hope that’s not what I have- I’ll try to get some tests for it

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